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Date: 03.08.2010
From: Sandie

Subject: More confused than ever

Hi all, I have dipped in and out of the forum for the last 2 years. In and out because I couldn't say what I had in all that time!! Had a second opinion last week and he did all the usual blood taking which will be 2/3 weeks before they are back, but no appointment till end September. He at least had a few thoughts on my problems (more than the other Docs have done in 2 years) and said there is more than one thing wrong, although I think I guessed that already. He is saying possible PA and OA. The biggest problem for me is my feet which he said he thinks is Achilles Tendonitis. Does anyone on the forum suffer from this and what do they do for it. He said to think about going on MTX and I suppose I should although I have a twin brother with problems and MTX did nothing for him so he is on permanent Prednisolone. Anyway if anyone can throw some light on this Achilles Tendonitis thing I would be very grateful. Thank you all.
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Date: 03.08.2010
From: Lynn B

Subject: Re: More confused than ever

Hi Sandie, I also have PA+ OA I also suffer badly with my feet, as well as everywhere else i too have Tendonitis (Achilles) and every where else in the body. I have been on mtxt.since December its not doing anything for me, but just because it doesnt work for your Brother doesnt mean it wont for you... you dont know till you try it its worth thinking about. take care.xx
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Date: 03.08.2010
From: Sandie

Subject: Re: More confused than ever

Hi Lynn, sorry to hear you are having no luck with mtx. are they going to try you with something different? I know you are right and I should not have a negative attitude before I even try something. Can you tell me more about your feet (I know that sounds ridiculous) e.g. can you wear nice shoes, can you walk far and what do your feet look like? Only one Dr has had a stab at what is wrong with mine, the rest said they hadn't seen feet like it before, and I keep telling them that I am sure I am not unique!!! Thank you for your comments, it's very helpful.
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Date: 03.08.2010
From: Lynn B

Subject: Re: More confused than ever

Hi Sandie, I have other medical probs with my heart, angina, Blood pressure so they told me because of my probs I can go on anti tnf soon. It can not come soon enough for me. As regards my feet I have probs with shoes I have that many you would not believe, they seem ok in the shop but after a few mins my feet are in agony. Some days they are that swelled and sore I can not walk, I have to hobble with a stick to get round the house.Some days they dont even resemble feet they look like one of those rubber gloves thats been blown up. The tendons and ligaments are all inflamed and very painfull.I hope that helped you.As regards you being negative about the mtxt your not on your own, let us know how you get on. t.c.xx
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Date: 03.08.2010
From: Lynn B

Subject: Re: More confused than ever

And also Sandie my feet are always on fire, the only way I can cool them is in a bath of cold water, they are hot and throb all the time. t.c.x
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