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Date: 27.07.2010
From: Abbie

Subject: Update and Referal advice!

Hi guys! Sorry I've not been on for a while but things have been quite hard. My arthritic pain and symptoms have worsened and it's really dragging me down from the simplest thing like tiring easily to the slightest every day task becoming harder and harder and the hospital i'm under aren't helping and this is where the Referal advice Comes in. To cut a very long story short, I've been under Rheumatology at my local hosp almost a yr now, and have seen 5 different consultants all with conflicting advice etc. Also when I see one and they say you need to be seen in say 8wks, they never have an apt at the desk and say they will send one. It gets to 7wks and nothing so I phone and told i'm on a bloody waiting list. Two times ago top consultant said he'd talk to my neurologist about infliximab/Remicade and come back in 12wks coz was increasing mtx shots. In mean time mtx shots decreased again coz mouth infections. 12wks no apt and in such a bad way GP had to call and call and get me apt. This was 3wks ago. Saw yet another consultant. No talk of Remicade but to be put on Ciclosporin and GP would get letter in week and prescribe. Saw GP last weds, still no letter and He's called them everyday since but no ones got back so still not on Ciclosporin and in bad way. Also hospital now provide blood work cards so they get results fast and before GP. Last weds GP was shocked hosp not rang coz CRP was 64 and ESR was 49 and coz no call back from them he's now given me prednisolone. Is it usual hospital treatment or is mine just bad. I've been looking into Rheumatology departments in neighbouring hospitals and the Nuffield orthopeadic centre seems good. Am I able to be refered there and If so how do I go about it? Sorry to go on. I'm gonna shut up now and go coz i'm up early having the first of my Psoriatic toe nails off.
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Date: 27.07.2010
From: Kirstine

Subject: Re: Update and Referal advice!

Which area are you from because im having similar proems seeing my consultant, im 8 weeks over due on my appointment! Keep on there backs and i hape everything is sorted soon for you. X
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Date: 27.07.2010
From: Abbie

Subject: Re: Update and Referal advice!

OMG that's disgusting! 8wks unbelievable! I'm under the Royal Berkshire Hospital. I Only seem to get an apt If my GP gets on to them. Maybe you should give it a go. Good luck hun! Go well X
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Date: 27.07.2010
From: Teresa

Subject: Re: Update and Referal advice!

I seem to have similar problems with hospital appointments! Only then I have to fight to get the meds prescribed by the rheumy from my GP. Took me 3 months once to get the anti inflams I had been prescribed. Now my GP had a letter asking him to give me Methotrexate and he is fine with that.. but wont prescribe me any other pain relief again. Just told me to take paracetamol. I cant start taking the methotrexate unless I get some half decent pain relief, because at least at the moment I can also buy ibuprofen with codiene in it. Been told not to take any ibuprofen with the methotrexate and that will just leave me with paracetamol. To be quite honest the thought fills me with horror!
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Date: 30.07.2010
From: Teresa

Subject: Re: Update and Referal advice!

Hey Abbie, how did it go with having the first toenail off? x
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