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Date: 01.07.2010
From: Jill

Subject: PERNICIOUS ANEAMIA

Hi gang that know me, long time no write huh? ok been ill for weeeks, had blood test done last week, shows i have the above......GOBSMACKED!!! just wondering how many others in here have this......I needed a special blood test for this, apparently they dont often do it, unless u present with the symptoms I had.....felt weak and thort i was dying off!!! anyway, seems my immune system is attacking itself.....it attacks the gut! and cos i have Gastritis, well, dont stand a chance do i.......anyway, be interesting to see who else in here has it, and how they r coping with it??? i need injections for life now!!!
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Date: 01.07.2010
From: KayJay

Subject: Re: PERNICIOUS ANEAMIA

Hi Jill great to hear but sad with the news. I've got anaemia but not pernicious . I know another lady who has to have injections and she says she feels a lot better after them. I think RA can cause ordinary aneamia ? Hope you will be able to still post here ;0)
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Date: 02.07.2010
From: Abbie

Subject: Re: PERNICIOUS ANEAMIA

Ah honey! HORRAY to having you back! Boo to pernicious Aneamia! (((Jill))) XXX
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Date: 03.07.2010
From: jill

Subject: Re: PERNICIOUS ANEAMIA

yea seems its bliddy rare.....1 person in 10,000!! and it has to be me again with summat blidddy rare!!!!! grrrrrrrrr, what worries me the most about this Pernicious Anemia is this, my gp printed out all the info(3 pages of info) and on last page states clearly that 4 people out of a hundred get stomach cancer!!!! that is scary, Plus it stated Even If a person does get over the Pern Anemia, a person can still get stomach Cancer simply from the fact they had Pernicious aneamia in the first place!....and also, the part I dont understand is, they r giving me B12 injections, for life!! Y for life?, Y cant it correct itself?? basically my body is attacking the gut!! fab...NOT!....also, thought there mb others in here that have it? no one has said they have, and there r many of us in here......I seem to get all the Rare type disease........Reiters for one! very rare, and on top of that Degenerated Tendons in shoulders, which means I have the Tendons that 80year olds get.....anyway, im doing it again, rambling, and full of angerrrr!! thats y i had to leave the forum, as it was making me upset, as talking about this condition just ingrains in into my brain that im very poorly!.....soz for going on guys x
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Date: 03.07.2010
From: Sally

Subject: Re: PERNICIOUS ANEAMIA

You are just one rare bird Jill! And I mean that in a good way :) Seriously though, try not to get too hung up on the stats. I know a woman in her 80's with pernicious anaemia and she is fine. One of the things in your favour is that they know your risk is increased so they can monitor you and do tests (I know! I know! you don't need any MORE tests!) but at least they will be on the look out for any nasties. Not surprised you are angry though but don't desert the forum because you have a lot to offer others. It's good to take a break from us all from time to time :)
take care.
xx
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Date: 09.07.2010
From: \jill

Subject: Re: PERNICIOUS ANEAMIA

Hi sally, thanks for your kind words, I know U r right, but recently, i found it was getting me down a bit, as I felt I cant escape from my illness, I do love helping people tho......so I will do that instead of Yakking about my own issues LOLOl xxx
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Date: 10.07.2010
From: sally

Subject: Re: PERNICIOUS ANEAMIA

hi Jill, you put a lot into helping others and that is great but you've also got to look after yourself as you know :) Sometimes it's hard to get the balance right - not great at it myself.
How are you coping in this heat?
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Date: 10.07.2010
From: Lynn B

Subject: Re: PERNICIOUS ANEAMIA

Hi Jill, so sorry to hear about all you have been going through, as if you havent got enough to cope with. Well all i can say is you deserve a medal. My daughter has to take B12 injections 4 life. Sorry i cant say anything to make you feel better, but i can tell you that you have an awful lot of support and love from all the guys you have reasured, helped and supported on this forum. And like you say to everyone else please rant rave and scream on here as much as you like we are all there for you as well ((((hugs)))). tc x
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Date: 16.07.2010
From: jill

Subject: Re: PERNICIOUS ANEAMIA

thanks Lynn and sally xx...Love the heat sally.... Lynn Hows u these days? x
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Date: 25.07.2010
From: sandra lowe

Subject: Re: PERNICIOUS ANEAMIA

hi jill lovely to hear from you, sorry to hear your pernicious aneamia havnt heard of it before, so big hug from me (((((hug))))
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Date: 26.07.2010
From: Jill

Subject: Re: PERNICIOUS ANEAMIA

thanks Sandra xx hope your well xx
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Date: 26.07.2010
From: sandra lowe

Subject: Re: PERNICIOUS ANEAMIA

hi jill feeling abit better, still getting tests done on my back,been on steriods so back to doctors tomorrow for bloods and then see what she have to say,xx
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Date: 27.07.2010
From: Lynn B

Subject: Re: PERNICIOUS ANEAMIA

Hi Jill sorry I missed you, how you feeling today? I havent been on much lately not been to good, feeling lousy like the weather up hear. Its nice to hear from you, You take care and look after yourself.xx
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