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Date: 18.05.2010
From: Liz Immins

Subject: Starting Infliximab & DLA Advice

Hi All

My consultant has managed to push my case through quicker I start Infliximab on Thursday after reacting to other anti-tnf. I am so glad as after two weeks of not having other one (Enbrel Pen ?sp?) I have been in so much pain again despite all my other drugs. Does anyone know what I should expect never had an infusion???

Also I am thinking of re-applying to disability allowance as a I was declined before but its not getting any better and now i'm on second anti-tnf treatment. When I last applied I was just about to start methotrexate but now I have been on that, and tried one lot of anti-tnf. Has anyone got any advice about applying - as obviously some days are worse than others but no matter what I am limited due to pain, stiffness and fatigue on top of the sife-affects of methotrexate and prednisolone! I hate filling in forms and I hate thinking about what I can't do and always try to grin and bear it for sake of my 3 year old who I am on my own with, despite the pain and limitations ! Thanks in advance for advice x x
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Date: 18.05.2010
From: KayJay

Subject: Re: Starting Infliximab & DLA Advice

Liz I can't advise you about the meds but with DLA you must always give the worst case senario. I was refused 1st time but for the 2nd application I took it to the Citizens Advice Bureau - then I got it !! It's not the condition we have got mainly - it's the way it affects us that's the important point.
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Date: 18.05.2010
From: Abbie

Subject: Re: Starting Infliximab & DLA Advice

Hi Liz! If my neurologist ok's it my Rheumy is starting me on Infliximab soon so i'll be interested as to how you go on with it. Good luck for Thursday and keep us posted X
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