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Date: 13.05.2010
From: lynne

Subject: Antibiotic Protocol for RA

Has anyone heard of or tried this, if so how did you get on?
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Date: 13.05.2010
From: Gemma

Subject: Re: Antibiotic Protocol for RA

Hi Lynne,
I have been on the antibiotic protocol for 8 years now and I'm in it for the long haul. When I see how far I've progressed without those worthless traditional drugs, I want to tell the world about how good the AP treatment has worked for me; it's great.
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Date: 13.05.2010
From: Amelia

Subject: Re: Antibiotic Protocol for RA

Hiya i don't want to sound stupid but what's antibiotic protocol???? lol Thanks x
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Date: 13.05.2010
From: Gemma

Subject: Re: Antibiotic Protocol for RA

The antibiotic protocol has been around for many years and been used successfully for rheumatic and other related diseases. It is often an overlooked treatment option. It is a treatment aimed at the cause of arthritis, not just the symptoms. It is based on the belief that RA is triggered by a microorganism like mycoplasma, similar in some ways to both viruses and bacterium, but much smaller. Treatment is primarily using antibiotics which have proven to be safe over many years of use. It is listed on the NHS best treatment guide and consultants do know about the anbiotic but I believe that there is a hidden agenda. May I suggest that you visit the
Roadback Foundation at www.roadback.org. and educate yourself about the therapy.
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Date: 14.05.2010
From: maz.aust

Subject: Re: Antibiotic Protocol for RA

I am using AP to treat my problems too. I was diagnosed in Nov 07, started researching the various methods of treatment, finding AP therapy along the way. I started on a gluten/dairy free diet in Feb 08 then in Jun started on AP therapy. After a bit of tweaking the meds over that time we changed 2 of the antibiotics I am on in Sept 09 & I am now asymptomatic.
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Date: 14.05.2010
From: Louise

Subject: Re: Antibiotic Protocol for RA

Gemma can you give a web link to the 'NHS best treatment guide' that includes antibiotic treatment for RA or any other related diseases. I am sure that if RA could be dramatically improved or cured using antibiotics the cash strapped NHS would have started using this therapy many years ago.
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Date: 14.05.2010
From: Sally

Subject: Re: Antibiotic Protocol for RA

What I've read suggests there is no conclusive evidence this works.
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Date: 25.05.2010
From: maz.aust

Subject: Re: Antibiotic Protocol for RA

Sorry Sally ,,,

There is no conclusive evidence that anything else works either !!
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Date: 25.05.2010
From: Sally

Subject: Re: Antibiotic Protocol for RA

What do you mean? There is conclusive evidence that dmards and anti tnf drugs work for hundreds of thousands of people.

However, if it is ever proven that this therapy works I would try it but whilst my consultants (who are involved in world wide research)tell me it is not proven I am not going to risk damage to my joints - which is what happens if you don't take dmards and anti tnfs.

In any case, if anyone thinks taking antibiotics for years on end is without risk they are living in cloud cuckoo land. All drugs, without exception, have side effects. 'Safe' is a subjective term. What is safe for you may not be safe for me.

Gemma says AP is based 'on the belief' that RA is triggered by a micro organism. I won't risk taking treatment based on a belief. I want treatment based on proven evidence thanks.
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Date: 25.05.2010
From: Amelia

Subject: Re: Antibiotic Protocol for RA

I am with you on that one Sally tc x
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Date: 26.05.2010
From: maz.aust

Subject: Re: Antibiotic Protocol for RA

Wow --- what a defensive stand.

There is no doubt that some doctors prefer one way to treat patients & some prefer another way to treat the same patients .. & strangely enough my specialists I work with are also involved in 'world wide' research ... seriously Sally was the remark about your consultants really necessary. This could go back & forth you said, she said, he said, we said ... isn't that a little silly

I am not now, nor have I ever said that the traditional way of treating these diseases doesn't work, in my mind whatever rocks your boat is what you should do & as long as you are making an informed decision & stangely enough I would support your right to do whatever you choose. But, why on earth you would make such a blatent statement about a treatment you don't know about, haven't used & won't consider is beyond me. From what I have seen is that many medications stop working & that includes using what most people refer to as 'the traditonal meds'.

We all know these diseases are not the 'one size fits all' so it seems to me that we should all be open to learning how others treat the same problem.

I am new to this forum but am also a patient, please don't try to diminish the effectiveness of the treatment path I choose to use.
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Date: 26.05.2010
From: Sally

Subject: Re: Antibiotic Protocol for RA

Maz, I'm not diminishing the effectiveness of your 'treatment path'. I was responding to your remark

"Sorry Sally ,,,

There is no conclusive evidence that anything else works either !! "

which is simply not true and could be seen as a statement attempting to 'diminish the effectiveness' of my chosen treatment. However, my treatment and me are not that fragile.

The reason I talked about my consultants that way is that I know about the research they do and where they are coming from and is one of the reasons I wanted to be seen by them, which is what you have obviously done too. It is not a defensive stance at all. My treatment is evidence based and that is what I want. As I said, if AP is clinically proved, I might consider trying it. Until then, I won't.

I'm not obliged to agree with your views and by disagreeing I am not diminishing the effectiveness of the treatment path you choose. It would be a pretty poor treatment path if a bit of debate sent it off course. This is a forum and a debate about these things is good for everyone.

All I am really saying is that I wouldn't do what you are doing and giving my reasons. I've really got nothing to be defensive about and I apologise if it came over that way.
tc
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Date: 26.05.2010
From: Angela

Subject: Re: Antibiotic Protocol for RA

I have tried to get the AP prescibed to me at my GP and my rhummy, and neither will entertain it anyway, and I dont think I am the only one in the UK to have this problem.
I do think its a bit unfair that we cant chose our own poison so to speak, I would have much rather tried antibiotics than mtx anyday.
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Date: 27.05.2010
From: maz.aust

Subject: Re: Antibiotic Protocol for RA

Over here patients seem to have more say. For instance in every public hospital there are signs all over the place telling patients that their doctors and/or specialists have a 'duty of care' to inform them of every treatment option available to them. That they have to fully understand the treatment options, be proactive in the decision making process & agree to whatever treatment they would prefer to take (they even have interpreters on-hand to translate).

It took me 4 months to research the disease I have. During that time I found out about leaky gut, how diet affects us as well as the various treatment options available which just per chance happened to include learning about AP therapy. I thought about it long & hard before I came to my decision. Within months I started to get better, the flares diminished in intensity & got further & further apart. Recent results show my numbers are dropping & I am now asymptomatic.
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Date: 27.05.2010
From: maz.aust

Subject: Re: Antibiotic Protocol for RA

Sally,
I think your words 'conclusive evidence' is why I said what I said; there wouldn't be a doctor/specialist here that would say they have 'conclusive evidence' that a treatment will work for any arthritic condition, what is stated here from the Rheumatology professionals is that they believe a certain treatment path may help, or in their experience it seems to help etc. There is no doubt that different meds work for different people (patients). With some people the meds they are taking work for a long time & then there are others who need to change to something else because the meds they are taking appear to have stopped working. That isn't any different to using AP.

As an aside my closest friend has chronic/severe RA & has chosen to use the traditional treatment path; I do support & defend her decision. That doesn't mean I would use it or agree with it.
(sadly all medications have stopped working & she is very ill right now).
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Date: 27.05.2010
From: Minnie

Subject: Re: Antibiotic Protocol for RA

I have tried all the medication and my body reacts to them.. My rhummy tells me, we can give you pain meds, and inflammtory , but nothing else we can do.. I won't stand for this.. I have gone to the Margaret Hill clinic, I am on her diet, 3 weeks now, and start showing sign of improvements, swelling going down, slowly and I will never go on those drugs again.. People did you know those drugs are cancer drugs.. My Rhummy tell me we are just human, and we don't know every thing. I ask if you was in my shoes would you take your treatment and he said NO !! what does that tell ya.
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Date: 28.05.2010
From: maz.aust

Subject: Re: Antibiotic Protocol for RA

Minnie,
So glad you are finally getting somewhere. It's really amazing how your diet affects all this stuff. If you can get the inflammation itself under control I have no doubt you feel so much better.

your statement : "I ask if you was in my shoes would you take your treatment and he said NO !! what does that tell ya"

Is pretty much what my entire medical team have said to me since I refused to take the traditional meds. It is interesting if you have a doctor who doesn't mind having a truthful chat with you what they will come out with !!

Must admit I am more than curious what kind of diet you are now on .. can you give us a hint how it works or what the main things are you have to watch out for ?? (I am just curious, you don't have to tell me)
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Date: 28.05.2010
From: minnie

Subject: Re: Antibiotic Protocol for RA

Hi Maz.aust
I heard from a friend of this women Margaret hill clinic. So I did research on the net, talk it over with my gP, and he said try it, it cant hurt.Then one day on the bus, I was limping because of my swollen knee, this women ask if I hurt my self, and I explain what I have. She was telling me her son went to this clinic, and he he cure now.. so she gave me his number , so i rang him.

I dont expect to be cured, but just to get the swelling under control, .. The diet is very strict, i have 3 of this Margaret hills boook, which i bought on amazon. and it is making a difference, but i still have swelling and pain, but my knee is finally going down, This clinic has vitamin and protein drink, its all natural, and i feel so much better.. I am told it can take a while , because its the natural way. I have wonderful support from them, because i do call alot and they are so patient with me.

part of the diet is no beef, pork. and some dairy, all the veg except tomatoes. and some fruit. its worth it , i am finding. and i have no side effects.. good luck, you can find it on the net..
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Date: 02.06.2010
From: Maz.aust

Subject: Re: Antibiotic Protocol for RA

Hi Minnie,
Sorry I haven't been on the forum this past week so didn't see your post.

Your diet strategy sounds a lot like what I have to do as well other than I also have to watch out for chicken & not eat too much of it (because our chicks go from birth to table in 6 wks so have been given heaps of growth hormone & stuff),

I think a good support team is mandatory !! we all need to be able to ask stupid or relavent questions & get a reasonable answer .. I used to be the queen of questions...lol I am sure though that the questions came from me not knowing or understanding fully what the treatment path was supposed to do & how I felt in the initial days/weeks .. the more I understood what was supposed to happen the less questions I asked.

It is a slow but steady treatment path & sometimes it seems we go one forward 2 back, but when I used to look back it happened because I had become complacent & had eaten something I shouldn't have .. ie night before last I sat & had (for the first time in 1-1/2 yrs) a glass of milk & so enjoyed it, well within 1hr I knew I shouldn't have done it, I had actually spiked a mini flare -- it's been so long since I had dairy all I needed was that one glass of milk & my system reacted.

Good luck on the diet,
keep us posted,
Maz.Aust
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Date: 21.02.2014
From: Millie

Subject: Re: Antibiotic Protocol for RA

How do I find a doctor who believes in the Antibiotic Protocol for RA. I live in Nottingham East Midlands?
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Date: 21.02.2014
From: Sean

Subject: Re: Antibiotic Protocol for RA

Hi Millie

Use this link it tells you how to find a doctor that will do AP -

http://www.roadback.org/forum/viewtopic.php?f=1&t=54
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