Date: 02.05.2010
From: Amelia
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Subject: felt a bit sad
Was watching Britians got talent last night with my 8 year old son and he was complaining that his legs were hurting, and i said it's just growing pains to which he replied i think i caught what you got mommy (RA) i then went on to explain you can't catch it etc.. and that i can't get better from it but medcines help me. THen he looked at me ever so serious and said that means you can never ride a bike with me ever again :``( It really touched a nerve and made me realise how much i can't do with my boys anymore. Sorry thought i would share it with others who understand. Does anyone else have young kids and how do you cope doing activities with them ??
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Date: 02.05.2010
From: KayJay
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Subject: Re: felt a bit sad
AHHHHH Amelia I'm so sad to read this. It is very surprising however how little ones seem to adapt to any situation. They are sure to luv Mummy so much that it won't be a problem to them.
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Date: 02.05.2010
From: Verity
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Subject: Re: felt a bit sad
Oh Amelia, I can see why you felt sad. It would do the same to me. I dont have kids but I can imagine how tough it must be with RA. Dont forget there are still plenty of things that you CAN do with them : ) Take care xx
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Date: 02.05.2010
From: Lynn B
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Subject: Re: felt a bit sad
Hi Amelia like verity says, you have to focus on the things you can do with the boys. And not the things you cant, bet theres loads you can still do with them tc xx
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Date: 03.05.2010
From: Lynn B
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Subject: Re: felt a bit sad
I have six granddaughters and we work around wot i can and cant do. They are so happy to try all kinds of different things. We play on the wii but nanny can only doe so much, and we laugh, cos nanny cant do it. we play catch up cos nan cant walk very fast. You just have to make everything you do into a fun(who can and who cant)I promise you Amelia they will love you no matter wot you can and cant do xx
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Date: 03.05.2010
From: Lynn B
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Subject: Re: felt a bit sad
They wont think its sad (think positive)You will find they will find things that you can do with them
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Date: 03.05.2010
From: Amelia
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Subject: Re: felt a bit sad
Thanks everyone yeah i am just amazed at how much they do pick up on, we have an allotment and we are trying to grow a bit of stuff and my boys are having a great time up there so i guess your all right i should focus on the things i can do :) Thanks again and take care x
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Date: 03.05.2010
From: jill
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Subject: Re: felt a bit sad
my son 12yrs old, said to me after my gall bladder op, r u ok mum, I said"yes, very much better, and felt good," ...and then he replied "yes but u still have Arthritis dont u"? That upset me lots, becos hes right, i may have got better after last op, but he knows i struggle when in flare up.......so Amelia, Know how u felt......also my boy have asked me will i ever get better, very hard to b honest, for fear of scaring them, but said this artha is rotten, and may never go away, but it comes and goes, and in between im ok(fibbed), but didnt have the heart to tell them the real truth!......anyway, we can do our best, when we feel our best,what ever that is.......tc all x
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Date: 04.05.2010
From: lucy30
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Subject: Re: felt a bit sad
Hi Amelia, Reading your post was like listening to myself sometimes with my son. I always feel guilty about things I can no longer do with him or have never been able to do with him. I have just had a hip replacement due to my RA and am due to have the other done as soon as I ca fit it in to my busy life. I have found that my son is a really caring sensitive boy due to my condition and this can only be a good thing. He also now understands that there are some alot of things I cacnt do with him but there are alos alot that I can. You have to try and think of ways to and other options to do just that. We play board games and read a well as watch dvds together. I know its really hard (my son is 8 toBut honestly your childrn will know you love thm and want to do things with them nd thats all that matters so please try not to feel guilty. You sound like your a great mum x
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Date: 04.05.2010
From: Amelia
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Subject: Re: felt a bit sad
Hiya lucy, yeah we have made fridays dvd night we get the duvet's on the sofa. I also try and read everynight to them... actually they read to me lol. I don't think it's so much as guilt i feel but more frustration! Thanks for all the advice everyone and tc x
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