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Date: 07.04.2010
From: Tracey

Subject: Warning re claiming for DLA!

Hi all, just wanted to drop a note to all of you who are claiming, or thinking of claiming DLA. Just a friendly warning from someone who works as a Benefit fraud Investigator!! (I am nice really!) - the CAB and other places are very good at filling in the forms, however, make sure it is an accurate representation of your life and not just words to make sure you get the dosh! Only saying this as I have seen people prosecuted for giving inaccurate information, or more often than not people not informing of a change in their illness.
I don't want to scare anyone off as those of you who are entitled to get it should get it! Just a friendly warning!
Another bit of advice...if they turn your claim down always appeal...you lose nothing and in alot of cases they pay on appeal!
Hope I haven't come across as high and mighty, just think we all have enough to put up with day to day without getting potential grief from the likes of me!!
Hugs and smiles! xx
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Date: 07.04.2010
From: Bernie

Subject: Re: Warning re claiming for DLA!

Hi Tracey, I think it is very gracious of you to disclose that to us. Yes, you are nice, otherwise you wouldn't tell us. That will meen so much to many of us, including myself. I'm waiting to be called, 6 months now. Here in Ireland they are on a go slow at the moment It is such a pain.
Thanks again Tracey ;-)
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Date: 07.04.2010
From: Verity

Subject: Re: Warning re claiming for DLA!

Hi, are you the ame Tracey thats been on the forum before?
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Date: 08.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

Hi Tracey, Why would you think anyone who posts on here would be fraudulently claiming DLA? You obviously do otherwise you wouldn't be giving us a 'warning.' People feel intimidated enough by the system (read some of the posts here and on other forums) without you adding to that. I think your post is out of order quite frankly.
Sally
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Date: 08.04.2010
From: KayJay

Subject: Re: Warning re claiming for DLA!

I wouldn't have dreampt of claiming DLA if I thought I wasn't entitled to it. Also at appeal the panel were very hostile to me ?why? I'm a 56 year old lady who has always abided by the Law yet they managed to make me feel like I was some young hoody in an interrigation room. The " doctor " on the panel even told me to take stronger pain killers !! How rude !! as if that would magically make it go away. Perhaps she was hinting if I became addicted to drugs I might have a better chance ?????

Ofcourse we are not going to make things up on the form whether the CAB are doing it for us or not. We don't have to - the evidense is there in doctors/hospital reports and prescriptions !!
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Date: 08.04.2010
From: Verity

Subject: Re: Warning re claiming for DLA!

Hey Sally,
I constantly worry about if im 'bad enough' for DLA when I cant really do anything for myself anymore and am having hip replacements! It is so crazy. Yeh there are scum that take advantage but that aint my fault is it lol! So why do I always feel bad!
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Date: 08.04.2010
From: Amelia

Subject: Re: Warning re claiming for DLA!

Hiya i am waiting to hear back from my claim to DLA and not once did i feel guilty about applying for it the only thing that put me off was the actual filling in of the forms lol, i agree with you sally i found this post out of oder to be honest.

This is something we have for the rest of our lives and let's face it i know i am not going to feel no better with my RA nor am i going to be cured of it nor can i do the things i use to and it restricts me in my everyday life both physically and mentally therefore i feel i am entitled to DLA and do not need warnings.

Verity- i hear you have a date set for your op i am sooo pleased for you hope things go well xx
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Date: 08.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

Well said Amelia! Why would we bother to post on a site like this if we didn't have a debilitating illness? It's a mad concept!
Verity, don't you feel bad about DLA! They wouldn't give it to you it you weren't eligible.
xx
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Date: 08.04.2010
From: JILL/DLA ClAIMENT!!!!! AND PROUD

Subject: Re: Warning re claiming for DLA!

Hi Tracey, Hi Gang

Tracey, People that take the piss out of the DLA would NOT bother conming in here, talking about their troubles, Lazy benefit spongers couldnt be bothered to do that, and they also wouldnt know what to say to us or how to describe the 'real sypmtoms' that genuine sufferes get!.....I hear what yur saying as a warning to us as trying to be helpful, but in all honesty its wound us all up, we hear this enough and I think U have possibly gone thru previous posts where Me and others have told other GENUINE sufferers How to make a claim.....mabe u have Misconstrude our point about Claiming DLA, I, for one advocate to all and everyone that comes in here in severe pain to make sure they make a claim, and that they r entitled to make a claim, that they r entitled to the Disability Benefit,and it is up to the DLA to whether they give it or not, Infact most often they dont!(that system is Crap btw, how they decide who can have it and who cant).

I in the past after being told there was nothing they can do for me anymore unless I have surgery(which I have) initially in 2002 I was refused it, didnt even know I cld claim it in the begining, was thru word of mouth! they refused me first time around, and for a while I didnt appeal, then got worse, ops etc, and I got it, lowest amount, lowest amount for frigging years, then I put in a reclaim, taken to a Tribunal(for me they were ok and understanding, But I felt like a stinky old Beggar, anyone that goes to a tribunal Will, Fact! After a few more corrective surgeries, I got angry, knowing I cannot ever go back to work, I reclaimed and eventually got the correct amount (highest in both components)....I Like Amelia NEVER feel guilty about claiming....Why?? becos Im ill with a rotten disease that is still active and degenrating my failing body despite the Toxic MTX and Enbrel I stick into my body! and also becos Im a genuine case(all of us in here are genuine)

I do understand your warning, but sadly its telling all of us 'to be careful when claiming and be honest etc'! Do u not think that just becos we have an insdious disease that we need a lesson in Honesty?? everyone in the world knows about Benefit Fraud, in all areas of the system, it does NOT matter who fills in the form, If I didnt live with my fella, I would get CAB to labourously fill it in for me, becos it takes ME 2/3 weeks to fill the damm thing in! the fact he is here, and im using Morphine, I ask my fella(offical Carer to tell me how long He takes to look after me) so some people have NO choice but get the CAB to fill the forms out....with due respect, U Tracey would be a grat candidate to type an Email to all the CABs around the country and warn THEm, dont Warn US!! sadly what u have done is incorrect, Y? becos altho U thought u were 'Helping us', infact U havnt at all, U have posted in here as a member having Arthritis, fair enough, U have made us larf with your Joke section, but now, I doubt ppl will have much time for U.......well fromn the reading of the posts anyway,U have upset genuine sickj people, and that is disrespectful, becos we dont need a Lesson in How To Be Honest When Clainming DLA!!....u have made a mistake Tracey.

When I tell ppl to claim, I tell them to remember to write down every little detail, Like it hurts ya shoulers, elbows when wiping ya Ass!, I tell them to let U guys know, that if U Dont wash, due to pain, then tell them u use Wet wipes(I do) all the Tips that I and others have told poor souls that r in agony in this supportive Forum,Most Newbies dont even know that the DLA Exists!! Y is taht, maybe U can let us know that....now that wld be Helpful........Its the Jobcentres that U need to mb have a Huge sign up about Fradulent claims(i dont know if there is one, cos I dont claim anything, other than what I am entitled to...DLA!! Also Tracey, U know Y im happy to claim DLA apart from the fact that I deserve it......the POxy hospitals over the years Misdiagnosed my condition, therefore I didnt get the correct meds, that is Y I am so bad to this day......2003 thru to 2007 = 7 corrective surgeries, ALL related to Arthritis! apart from a soon to have Gall Bladder removal, Im due yet another Major Spine op(fusion).......There are many , if Not all in here that suffer so badly. Also the way they work out the DLA is dreadful..... they specifically give out Dosh(as u put it) to ppl taht can hardly walk!!!I understand Y, of course, However, there r so many that suffer mb Not with walking, but every other joint is SCREAMING in severe agony!, they sadly r the ones that r rejected!! UNFAIR!!......I will stop rambling on now, but I personally think your mentioning all that U did in your Post, was just to BRAGG that U r a Benefit Officer that deasl in cases likje ours!! Blunt, but True, I think, becos if U truly understood what we suffer, and IF infact U to have Artha, NOWAY would u have revealed to all us deserving Members, Warn us decent People about Fraud and the CAB!!!!
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Date: 08.04.2010
From: Amelia

Subject: Re: Warning re claiming for DLA!

Well said Jill .... your soo good at this lol

i just felt the original post was a bit of a kick in the teeth and i am sure others felt like this too. From your advice Jill and others on the forum gave me the confidence and the know how to apply for what i am entitled.

We have other people on this forum who work within in the benefits system Tracey, and they don't try and discourage us !!!
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Date: 08.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

Hi Amelia, thing is, when I first read it, I thought Ok thats good of Tracey giving us taht info, but then I read the others posts, and totally realised WTF!!that it was actually offensive, and the gang r right....I fought dammm hard for my DLA, so im with the gang on this one, its sad really cos Tracey was a laugh, at first!

how u coping Ameila? u painfree..ish?
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Date: 08.04.2010
From: Amelia

Subject: Re: Warning re claiming for DLA!

Hiya Jill,

Well i had to keep reading it and re reading it lol too right we do have to fight for it and everyday is a bloody fight too, so why shouldn't we have something i am going to stop ranting about it lol

Yeah am okish just waiting for my specialist nurse to get intouch with me to start me on a new injection called CIMZA i think it's a newish drug as i can't find no info on it !!! Went to see my consultant 2 weeks ago and he said he was shocked at how progressive my RA has been since Decemb so got to have some ultra sounds done on my wrists and he was saying i have got damage in my middle toe's he was asking if it was painful and i was like no but i can feel it crunching when i walk lol So cut a long story short in a bit of pain at the mo as he has took me off Lefleumonide ready for the injections and left me on just 10mg of mtx so i am an unhappy bunny lol and the arcoxia is doing naff all so may just have to give them a call tomorrow.

Anyway i am waffling on again :D How are you any more news on a date for your op? i feel like such a baby moaning about my pain when it's nothing compared to what your going through at the mo xx
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Date: 08.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

Amelia, as far as im concerned, pain is pain, no matter if its just in the finger and no where else, still hurts, and at end of the day, we live the lives we live behind closed doors, so I infact respect what u r telling me, and its kind of u to say to realise im going thru a lot of Poo at the mo, but honest, i dont see it that way, if the pain was just in your little finger and the begining stages of the disease, I wld still feel concerend for u, cos at end of the day Pain is a dreadful thing, yea ive been thru a lot of ops to correct tings, and then get told, ive got another health issue, like recently, was told my shoulder tendons r disappearing, age of 75/80yrs olds get it that bad, but at that late age, so after I fight one battle, I often get more bad news, say 4 months down the line, so kinda sick of it, but please dont say your ok compared to me, I know there is always someone far worse off than ourselves, and im sure there are in here, they might just not be telling us....Me, well I blurt it out as therapy, lol so I can get a Hug lol....seriously, we all go thru different degrees of pain, and diff severity, just sad they left me tooo damm long, cos i wldnt be like this now......but like I told Our Verity(she is the lovely gal that is having TWO hips ops at once very soon) was saying its her age, cos soon she is celebrating her 80th birthday soon, lol, but has the cheek to visit the Younger generation forums!! LOLOLOLOLOLOL(blimey shes goona kill me big time)..... btw i take arcoxia, its a good anti inflam, but a crap painkiller,, do u use it as a painkiller? seems to me U need decent painkillers.....tc ok Jillx
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Date: 08.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

hi Jill, good post :)

I, for one, am sick to death of people telling me what I can and can't have/do/should expect/should want/would like/should have/shouldn't expect/don't need/do need/don't like/should like/should put up with/shouldn't have/could do/can't manage.

Just because you have a disability/illness/disease doesn't mean you can't think for yourself and you've lost all sense of decency and integrity.
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Date: 08.04.2010
From: JILL

Subject: Re: Warning re claiming for DLA!

Yayyyyyyyyyyyyyyyy Well said Sally....wow U said all that in one line, well two......U hit the Nail on the Head!!! lol I wrote a book to get to my point!.... stay well Sally and let us forget about her stoooopid, ignorant posting! x
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Date: 08.04.2010
From: Verity

Subject: Re: Warning re claiming for DLA!

Right, thats it. This means WAAAAAAAAAAR!!!!!! Haha
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Date: 08.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

Thanks Jill, I'm not too stressed but just angry on behalf of people like my dear Mum who refused to claim the higher rate of care cos she thought they would take her DLA away from her. She could do ****** all in the last few years of her life and she could have used the extra cash to pay for help that she badly needed. That's all.

Oh! And having to deal with a snotty OT supervisor today at the council who won't approve the shower I want and need cos it doesn't have an anti scald device in it.
xx
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Date: 08.04.2010
From: Amelia

Subject: Re: Warning re claiming for DLA!

LOL you girls make me laugh

Will ask for stronger pain meds Jill as the arcoxia dosen't do anything for me grrrr

Yeah your right pain is pain i think that i am just use to bottling my feelings up and i have found when i talk about it does helps so you poor gals might have some more moans off me yet hee hee.
Take care xx
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Date: 08.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

Moan all you like Amelia!
xx
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Date: 09.04.2010
From: Verity

Subject: Re: Warning re claiming for DLA!

Bring it on Amelia! lol x
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Date: 10.04.2010
From: suze

Subject: Re: Warning re claiming for DLA!

hi all just read all of the messages lol what a joke...... i have just been told that i am not entitled to dla lol i wonder if they would come and help me on and off the toilet and make my dinner and help me walk up and down the stairs as they think im fit enough to do that xxxx
hugs to all
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Date: 10.04.2010
From: Phil J

Subject: Re: Warning re claiming for DLA!

Talk about people with real physical problems claiming what they are rightfully due as in DLA and should get if their condition is bad enough. How about Tracy getting off your soap box and investigating some MP's who use and still are using public money for their own expenses, now for me that is what I call fraud!! They have good well paid jobs are in the whole able to get around quite sufficiently (sometimes via chauffeur driven limousines) and still steal our public purses. Now people with RA and other dibilitating diseases that make it hard for them to get around should not be treated as criminals for claiming what they are due....perhaps Tracy you are looking in the wrong place for the people ripping off the system!
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Date: 13.04.2010
From: Tracey (in defense!!)

Subject: Re: Warning re claiming for DLA!

Well...that told me!!! I can understand the upset but I think you have misunderstood the reason why I put the post on in the first place. Why on earth would I "brag about being a benefit investigator" - we are not the most popular of people with some at the bestg of times!! I was merely trying to ensure that you don't get caught in the same trap as others I have seen. For the record I don't investigate DLA fraud, which I think I stated. What I have seen is claimants having forms completed by CAB etc and then being interviewed and asked the questions directly and them saying the answers didn't actually apply to them, it was the person completing the form stating things in a way that was more liely to get them the benefit.
I actually find it offensive myself that some of you think I was having a pop at people who should not be claiming DLA. Totally the opposite actually as I constantly see people in receipt of it who have no bloody right to be on it, but those that don't get it deserve to have it. I do not make the legislation, I do not say who does not or does get this benefit and I would be the first in the queue to say the system is CRAP!
Would I bother coming on a forum like this if I thought you were all scammers and fraudsters??? really?? Are you forgetting that I have the same illness as a lot of you so what have I got to gain?
I apoplogise to all those who misconstrued my post, it was not intended to wind anyone up, it was a friendly warning about the fine line people tread when claiming these benefits and does stem from the piss-takers who take advantage of the systems, not the likes of you on here, but unfortunately anyone claiming is treated the same.
I understand I have been on the receiving end of all your frustrations with this particular benefit but please do not cut me down for trying to help. I hope you can read the posting again from a different angle and not think I am some plonker who should not be on here!
Take care all xx
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Date: 13.04.2010
From: Tracey (Trying not to be angry!!!)

Subject: Re: Warning re claiming for DLA!

Just to add, having re-read the comments made...i did not at any point imply any of you would claim fraudulently. Infact, if you read the post again, I merely pointed out that if someone fills out the form on your behalf they can phrase things in such a way that does not realistically show your true circumstances. No two people on here have the same exact symptoms etc so everybody's claim is individual and I was actually trying to be helpful!
I am not on a soap box and Jill, you actually said when you first read it you thought differently, as did Bernie, until someone read it differently and then you all let loose!!
I too suffer the same illness and to suggest otherwise is pretty low. I too was misdiagnosed for 10 years and am now suffering the consequences of not having the right medication for that length of time.
I understand how everyone on here feels, as I am the same and understand how defensive you can get about your illness, but I think that the comments to me have been blown well out of proportion and some are actually quite hurtful.
Please read the post again and see it in the way it was intended! it can be read differently if you choose!
x
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Date: 13.04.2010
From: Verity

Subject: Re: Warning re claiming for DLA!

Hey Tracey

I think there may have been a few crossed wires here. After reading what you just wrote I can see that what you wrote was taken in the wrong way. Like you just said we get defensive! lol

Lets start again : )
xx
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Date: 14.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

I read the post as a negative stereotype of recipients of benefits, DLA or otherwise.

There is no such thing as a 'friendly warning.' A warning is a warning. Why were people on this site given a warning? Because they might, accidentally or otherwise, make a fraudulent claim, according to the post. If that wasn't the point, why say it at all?

I stand by my original response.
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Date: 14.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

Tracey, after some thought I've decided I want to explain my stance on your post. My mother was in receipt of DLA and refused to go for a higher rate when her osteoarthritis worsened. She used a walking frame in the house and a wheelchair or scooter outside. Two months before she died she confided in me that she was worried her DLA would be taken away because she had managed to walk across the room without her frame one day (and one day only.) My mother was an intelligent woman but her illness made her very vulnerable. She was very affected by negative press about benefits and thought she was in constant danger of losing her DLA. I begged her to let me try and get it raised but she refused. By reinforcing negative views of benefit recipients you scare the most vulnerable in society. That is why I thought your post was out of order. I'm not going to enter into any more debate about this subject as it is just too painful for me but wanted you to understand the impact of what you said in your post.
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Date: 14.04.2010
From: Tracey ( I come with olive branch)

Subject: Re: Warning re claiming for DLA!

Verity, thanks. Sally, I am sincerely sorry for upsetting you. I would not have said anything if I thought it would have had this response. I totally understand where you are coming from re your mum and I too get angry that the right people aren't getting the benefit they are due. i understand why you have said what you have said re my comment and I wish I had not said anything now! It's only cause I want people to claim what they are due but not to come unstuck with a system that treats fraudsters and genuine people the same. I have got a friend who has got MS who got refused DLA, it is infuriating and, working in this area, I myself have chosen not to apply (rightly or wrongly). I accept that maybe I am mroe than a little bit synical because of the job that I do, but just want to reiterate that I NEVER meant to upset anyone on here at all. So, I am sorry Sally for the upset and trust you can forgive my misguided judgement. xxx
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Date: 14.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

Hi Tracey

Ok well I did read it first thinking how good of U to inform us, until i read that u worked for them, then I read the posts of the gang, and re thought things thru, hense my very long rambling post......I did feel offended, and felt kinda upset, becos wehn u first came in here, u were so humourous and we all love that......not goona go on about the past post u sent, but ive been in here two years now, and the amount of crazy posts we get is unbeleiveable and offensive...... anyway, I dont tend to hold a grudge to anyone if they have gone to the trouble of explaining that they could have put the post a bit more clear!...anyway, I do see that U Thought yu were trying to help us, but at end of day, we still didnt need to know or read the way u typed the post(if that makes sense) im happy to clear the slate clean, and I know others will, we know u suffer from the same condition as us, and I wont turn anyone away, and Im sure the others wont either...... and im gld u came back to explain to us what U infact meant and realise Y we got upset

tc Jill
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Date: 18.04.2010
From: Sky

Subject: Re: Warning re claiming for DLA!

..."I wont turn anyone away"... didnt know you were in charge of this site Jill!!!
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Date: 18.04.2010
From: KayJay

Subject: Re: Warning re claiming for DLA!

Tracey I just want to explain my reason for letting the CAB fill in my application as you state " I merely pointed out that if someone fills out the form on your behalf they can phrase things in such a way that does not realistically show your true circumstances." I don't know if it's a general policy of the CAB reps but mine took very great care and time to point out that everything they record must be truthful otherwise they would be in trouble. So , for me , the CAB were very thorough - they even had me walking [ on an icy day ] with my stick timing the walk and how slow I was before I had to rest.I filled in the 1st form which went to a Tribunal and failed. The 2nd time [ 3 months later ] the CAB filled it in and I was awarded it.

I just want anyone who is scared of filling in the form NOT TO BE as their CAB office will help them with this.
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Date: 18.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

SKY shutttup will ya ffs.....im not in charge of this frigging site, my point is(and Y im explaining this to U i will never know) is taht I wldnt IGNORE TRACEY!!! get it??? goood, now pisss off and dont talk to me Sky who ever ya r!!!or is it a m8 of Traceys?? I dont give a f\***K, cant stand Idiots, and your one of em....plus your ignorant!!!! re read my post, actually I have every right to sday I wont turn anyone away....becos I can choose who the heck I wannna talk to and who I dont!!!!! and that was what I was getting acrosss to'Tracey'....god ya thick!!!!
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Date: 18.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

oooh c I havnt had a reply from the Mysterious'Sky'...Hmmm wonder y? know its not a newbie, been in here long enuff to know Newbies dont react like that....guess its a coward that wont reveal 'its' name. or the Usual name 'it'goes by...lets c....Guts or not guts...... reveal who ya r!!
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Date: 18.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

Of course Jill is in charge of the site lol!
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Date: 18.04.2010
From: Kirstine

Subject: Re: Warning re claiming for DLA!

Have to say this thread is keeping me entertained... Doing wonders keeping my mind off everything lol. (hope no one is upset by me sitting being cheered up by all this) x
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Date: 18.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

LOLOL Sally, gotta be honest, that stoooopid comment the 'Dark Sky' made was so thick, made me larf lolol......how r u today Sally? x
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Date: 18.04.2010
From: Tracey

Subject: Re: Warning re claiming for DLA!

Blimey Jill, I got off lightly in comparison with "Sky" (who by the way is absolutely nothing to do with me!!!). x
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Date: 18.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

I'm ok thanks Jill. Cheered by your posts!
spoke to rheumy nurse on thursday who was pretty useless. Wanted to put mtx up and pred but I said no. Gonna wait a little bit longer to see if mtx kicks in. first.
tc
xx
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Date: 19.04.2010
From: Lynn B

Subject: Re: Warning re claiming for DLA!

Hi jill feeling realy s..t today till i started reading this thread dont know wot it is girl... but god i feel better glad your feeling better.... xxx
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Date: 19.04.2010
From: Jill

Subject: Re: Warning re claiming for DLA!

LOL gals.....i love a mystery hehaheha, trust me, I will find out who it is.....!! anyway Lynn Im feling good, until this morning, My son wont go bk to skool!!!! hes been offf year and half(remember) so they taking it slowly with him as he has School phobia(geneuine prob) doing my head in he is....hope U feel better Lynn, its not fair, been far too long for u to feel shit¦!! ((((hugs for u)))) xxx
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Date: 19.04.2010
From: Jill

Subject: Re: Warning re claiming for DLA!

(((Sally)))) I hate to hear that rhummy nurses r crap....we need their good advice, Y do they just want to dish put or up the meds, it isnt always the ansa is it...... I wld do what u r doing too, wait a bit longer Sally, I have and over the 3 years, I dont get that rotten taste in the mouth, the sicky feeling, I do get tired tho...but hey, the disease does that anyway....... know its miserable for u right now, but rest as much as poss, even if it means going to bed to sleep thru the day, dont see it as a waste, your body doenst see it as a waste, its telling U to rest, relax, de stress, and most of all Not to feel guilty....blimey, Im rambling, wish I knew u, wld giver U a big Jilly Huggles xxxx
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Date: 19.04.2010
From: Jill

Subject: Re: Warning re claiming for DLA!

LOL Tracey....well she was rude, u wernt! how r u anyway?
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Date: 19.04.2010
From: sally

Subject: Re: Warning re claiming for DLA!

Thanks so much Jill, read it this morning after sleeping in til 10am (v unusual 4 me) so good timing on your part. Sometimes I feel like the world is closing in on me and everyone I value is leaving (2 of my consultants, lovely dr, sister moving away on Thurs, close neighbour and of course lost my mum last year) is tough time for me. Do you feel angry about this disease sometimes? I think 'why me?' 'why now?' Went to a party on Sat and there were no chairs so I sat on the stairs, no-one came to talk to me so I went home early. Am re-evaluating some of my friendships right now as feel let down. No-one really understands. Blimey - am moaning Minnie this morning! Sorry but it's good to get it out.
how are you Jill? Here is me complaining and you have a lot on your plate and yet you stay so positive. How do you do it?
tc
xx
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Date: 19.04.2010
From: Tracey

Subject: Re: Warning re claiming for DLA!

Hi Jill! Not too bad, thanks for asking. Fed up like most people on here! Fed up of pain and tiredness etc etc etc! Waiting to get an appt to see Rhemy about changing from Sulfa to Mtx. As we know, it could be a long wait!! Sorry to hear you are having your own troubles, life is never straight forward eh?! xx
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Date: 19.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

Sally, I think U r right to be re evaluating your freindships, someone could have tried to get u a chair, and to think u even ventured out is amazing , so be pleased with yourself thst u acheived that ok.....mb it was the drink, tht they didnt see that u were in pain? I need a chair, half an hour and im in trouble, I also understand your loss, and Yes I get very ANGRY about this crap we go thru,, I guess im a positive person, but its brought on by guilt, i have young family, and my Mum suffered like your dear Mum, and I dont want my kids to see me, or remember me(which they will) as always having bad days, operations, or being miserable.....its NOT easy tho Sal, honest, But I get it from my family, or my Dads side, be strong etc..... Sally, dont ever feel bad about thininking "Y me", I do that all the friggging time, honest! I couldnt beleive that the GB was playing up, for me that was the final straw, and I truly was Peed offf about that, becos im on the MTX, Enbrel, and yet, I couldnt Not control what waas happening inside my tum!, very angry about that, but I do feel goood right now, its almost given me a diff outlook on my present condition, however, scared me from having Fusion!.......u can always talk to me sally, u on fb? wld give u my moby, but there is someone on here causing me crap right now....LOL always one right?.....I stick to one close best m8, she has a terrible back, irreprable, known her 15 years, I have to keep my social life to a minimum, friends too, becos I get knackered talking on phones etc....and I dont like to let ppl down....so im rather reclusive, it helps me.....ive beeen let doen by past so called m8s in the past too, I dont expect much from people...unless I love them dearly, and r close m8s(lolol dont mean memembers on here by the way), talking about the situation u were left in on the frigging stairs! dreadful ((((((hugs sally))))))xxx
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Date: 19.04.2010
From: Jill

Subject: Re: Warning re claiming for DLA!

Hi Tracey, same here, seems u have a fan that Hates me LOLOLOL.....anyway god luck with MTX, i didnt get on with sulpha, r u bad enuff to go on Anti TNF??tc
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Date: 19.04.2010
From: Sally

Subject: Re: Warning re claiming for DLA!

Jill, thanks for your post. I was a bit gob smacked that no-one noticed I wasn't joining in, esp the friends who urged me to go in the first bloomin' place. I need to spend my time with those peeps who really are my friends. You are amazing with everything you have to face. It must be hard on you and the children but I think they will see (and remember) you as a strong person with humour, compassion for others, kind and resilient. That's how I see you and won't believe you only show that on here! I'm not on facebook - well am but have deactivated it. Hate the public side of it, though I suppose can limit who can see details. will have think about it again and let you know. Spoke to my gp today who is very sweet and supportive. She thinks I should go up on Mtx next time I see rheumy nurse. Says my bloods are ok. So might consider it. Enough is enough.
I think you are a good friend and am mad about the grief you getting on here. I don't think people should make an open post like that, if someone really has a beef they could email privately to webmanager to complain. It seemed very provocative to me.
tc hun!
xxx
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Date: 19.04.2010
From: jill

Subject: Re: Warning re claiming for DLA!

Thanks Sally, Your a very sweet person and im drawn to u, so wld be nice if u cld mb get FB up and running again, I, like u, hate all that rubbish I get sent to me, but I have m8s on there that i keep in touch with that i knew 28 years or so ago.... and hope to meet them soon, in may when im well.... Stay strong, chin up....ths again, Love Jill xx
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