Date: 01.04.2010
From: Abbie
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Subject: Sick of tuts and rolling eyes. . . I AM in pain!
Hi all i'll try not to ramble but have had enough. I live with my Mum so you'd think she'd understand my Arthur. If I ever mention it or wince etc she tuts and rolls her eyes. When the mtx pills weren't working she said don't see why you're in pain it should be gone now. Changed to mtx shots coz pills didn't work but even though I've been told it takes 6wks till i'll know If they're working and I've Only had 3 I really don't think she believes this flare and that my pain is bad enough for morphine. When put on 12hr morphine on friday I explained all about breakthrough pain and that's why I still need the Oramorph. Took some tonight and she tutted and said don't know why you need that you've done bugger all all day, yeah Only because I wasn't physically able Argh! If I ever try to talk to my sister about it she be littles it/me. Also I had to cancel an evening out last fri coz of this flare and it was Only my best friend who understood. Does anyone else get this. It has me doubting myself and feeling like i'm a hypochondriac.
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Date: 01.04.2010
From: Kirstine
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
My mum can be like that with me so i can understand how you feel. Has she been to any rummy appointments with you. If not try taking her in when you speak to him/her, perhaps ask about your meds and question how they work so she hears it all from a specialists mouth and has no excuse to belittle your pain.
Maby she is being flippant by tuttin as a way of waving off seeing you in pain by making it not a big deal, because really she hates seeing you in pain. Thats why mine is like that, its like if she doesnt acknowledge it then its not happening!
Im not living with her which makes things a bit worse as she never sees me on my bad days. Not sure if that helps :). But just remember your not alone! Im 23, new on here and trying to get to know everyone, i have RA and am on mtx naproxen ect. What about you? X
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Date: 01.04.2010
From: valh
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
hi i feel for you but the first thing is it is not in your head an it normal to go through this. but you r in pain we know we all feel it one way or another so you are not on your own, arthritus care hase some very good information go on and show your mum she can see how every one suffers and needs suport of those near them i do not bath now unless oh in as scared will not get out it getting harder lol do not want hunky fire men coming and lifting me out in my all together. sorry your mum does not understand mine goes other way always trying to help try to explain need to potter as stops me stiffening up there is no winning.(((hugs))))
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Date: 01.04.2010
From: Abbie
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Hi Kirstine! Thank u everso much for your reply. For someone so young you are so wise. My Mum came with me to my first apt in Aug but none since. Due one soon so i'll ask her to come with me. Never thought it might be to do with her not seeing me like this, thank you! Going back to your last question, i'm female, 33, was diagnosed in Aug last year am on mtx injections, folic acid, depot steroid injections, Prednisolone, Alendronic acid, Adcal D3 and Morphine. Go well! X
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Date: 01.04.2010
From: Abbie
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Thanks Valh! I'll go on that website for the info. I know what you mean about the bath. If I venture in i'll Only do it If my Mum is home. Thanks again. Go well X
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Date: 01.04.2010
From: jill
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Hi Abbie, I agree with the gang, particualarly the comment Kristine said......this forum always tells memebers to take the family or hubbys, wives, anyone that is showing the same view way your mum is. it will open her eyes, and u can ask the rhummy in front of your mum what the disease does to our bodies, and also what the meds do.....tc Jill
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Date: 01.04.2010
From: Lucy30
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Hiya Abbie, I think people dont see it could be so bad if you look young (I'm 30 and have had arthur since age 2)etc. I have had friends and work collegues that havnt understood and its not nice when people say things and dismiss the pain we are in. I think the suggestions are great about your mum going with you as you can ask the consultant to explain your condition and the pain etc it causes.
You could also let your mum read the info for your medication so she realises that some medication makes you tired or can take time to take effect/have side effects. Try sitting down and talking to her and explaining how you feel and what she could do to help. Maybe she just dosnt realise the extent to which its affecting you. You may put on a brave face.....I know I did. Hope all go's well Take care Lucy
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Date: 01.04.2010
From: Jill
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
lucy Have u had a birthday?? cos ya normally Lucy29?? u r the same arnt ya? if ya, r lots (((((Hugs)))) if ya not, they can be Welcome Hugs instead lol
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Date: 01.04.2010
From: wendy
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Why is it when you are young people think you can do marvels and s**t wonders,i am 47 and the looks i get when going anywhere and you park in a disabled spot you get looked at as if you have two heads,people don't understand that you are in a lot of pain i'm lucky my other half understands and supports me,but no other family understands
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Date: 01.04.2010
From: Abbie
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
You're comments have all really helped me. Thank you! You're right Lucy I do put a brave face on most of the time which might be why my Mum doesn't think I need the morphine when believe me I do. Will defo take here to Rheumy next time If she can leave her work. If not, maybe i'll take my sister. Thanks again X
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Date: 01.04.2010
From: Sally
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
I know what you mean. Saw someone today who told me I was looking much better! And me in the middle of a flare. It's very tedious and I started to explain myself and then stopped. Couldn't be bothered, let them think what they want. I think it is a case of wishful thinking sometimes, family and friends don't want to think you are ill so pretend to themselves you are not. I got very cross with my sister the other day as, when I told her I was worried about Dad's cough that he's had for ages, she just said 'oh! he's ok, he's been to the doctor and had tests and it's nothing.' Not true! None of it! She is such a liar! I told him go to the doctor (no, he hadn't been, hadn't had tests) and turns out he had a low grade chest infection that needed antibiotics! Easy peasy! What's the problem? When I told her about my diagnosis she just talked about how ill her husband was with arthritis - turns out he's got zero arthritis! No idea what that is all about but it drives me nuts. She just can't listen to a word I say. You have my sympathy Abbie. Perhaps you should take them to your appointments as others have suggested. I told my sister to look it up on the web but bet she never has. Apologies for rant :)
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Date: 02.04.2010
From: Lucy30
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
ha ha Jill yeah I had a birthday i'm now officially in my 30's getting old :(
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Date: 02.04.2010
From: Lynn B
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
I know wot you mean my sister was the same, dont know wot all the fuss is about, a little bit of an ache. Till I took her with me to see the rheumy. My god was she not the same person after that, she cant do enough for me know.
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Date: 03.04.2010
From: sarah w
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Hi Im new to the forum. When i was first diagnoised my mum would not let me sit down for to long as she said i may stiffen up and not be able to get around, i think it was her way of coping as it must be horrible to see a child no matter what age (i was 18) in pain. I remember once getting stuck in the bath calling for mum to help me get out, we decided to let the water out of the bath to help, believe me it didnt! we laugh about it now but we didnt at the time.
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Date: 03.04.2010
From: Verity
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
I used to HATE havin baths as a child. Bein manhandled when your cold and naked is sooooo horrible!
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Date: 27.04.2010
From: anna
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Hi,
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Date: 27.04.2010
From: Verity
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Yeh Im sure you did! aaaaaaaaahahahahahahaa!
Whatever.....
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Date: 27.04.2010
From: Abbie
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Oh quick pass the phone! . . NOT!
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Date: 27.04.2010
From: Jill
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
LOLOL anna.....u cant fool us lot, we r vetrans......what is the scam, ring ya number and u get all our mobile fees? or y wld any of us Bright , intelligent people ring a stranger with a 'treatment' that Our experts havnt even heard of? who pays u type of ppl ? Y on earth wld any of us try a 'New Treatment' that U developed......hey we might be in pain, but our brains still work!..........dont come back, or il report u!!unless your an Alien, cos I know Aliens like humans and ive seen it on the tv in films tht Aliens can cure evereything........hehaheha....ring this number +44785049666...its the local mental house!!!
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Date: 28.04.2010
From: Lynn B
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Will someone show her the way OUT!!! PLEASE
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Date: 28.04.2010
From: Jill
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
who moi LOLOLOL
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Date: 28.04.2010
From: jill
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
last time I told somneone to P** offski, got told offfski .....lololololololololol......we always get a nutter in here......im gonna ignore the twat, if It carries on, we can report the ignormaous!
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Date: 28.04.2010
From: Lynn B
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Subject: Re: Sick of tuts and rolling eyes. . . I AM in pain!
Its not worth the aggro Jill if we just ignore it she might go away...
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