Date: 24.03.2010
From: sarah
|
Subject: new kid on the block !!
hi its my first time on here and can i say that from what i have read so far you all sound lovely. im 36 and have RA, started off as reactive arthritis after having the flu !! now im stuck with it. Fed up taking so many pills but know its for the best, how does everyone else cope?
|
Date: 24.03.2010
From: jill
|
Subject: Re: new kid on the block !!
Welcome Sarah....we r alll
lovely lolol, im ther loveliest of course! I origionally Had Reiters diseae and they ssay the Inflamartory artha I hav is also Reactive arthrits, emaning it come on becos of an infection....great huh, flu and stomach bugs, nasty bacteria etc can cause it....how lontg have u had this? (lots questions) what type meds r u currently taking? Regarding coping, I take each day as it arrives, cant plan things in advance, becos u can bet ya bottm dollar Im either fatigued, or in agony! im taking Methtrexate and Enbrel Bio logic meds....and lots painkillers(Zomorph), flare ups r less, altho Im not without pain, and I have a lot of problems with the soft tissues, i.e. tendons, ligments, and discs. anyway, altho there r forums out there, this one is the best.....lots support given and understanding. How do u cope each day...also do u have any Tips? we try and exchange tips, andanything tht might help each of us.....cht soon, tc Jill
|
Date: 24.03.2010
From: sarah
|
Subject: Re: new kid on the block !!
hi jill, sometimes i dont know how i cope, its just a case of having to i think, im taking allsorts of medication, steroids, painkillers, sulphazalazine, calcium and vitamin d, the list goes on !! ive had it for about 18 months now.
|
Date: 24.03.2010
From: Verity
|
Subject: Re: new kid on the block !!
Hi Sarah! Like Jill, I take each day as it comes. Im really bad for making loadsa plans, thinking I'll be ok, but when it comes down to it I get knackered straight away and end up disappointed I didn't do everything. Its stupid! lol
Where does the arthritis affect you? xx
|
Date: 24.03.2010
From: sally
|
Subject: Re: new kid on the block !!
Hi Sarah, welcome to the forum! Jill is the lovliest lol! I'm on tons of meds too, take each day as it comes like everyone else. Frustrating sometimes but I manage. The gals on here help a lot too.
xx
|
Date: 24.03.2010
From: Abbie
|
Subject: Re: new kid on the block !!
Hi Sarah! WELCOME! Everyone is lovely here, so understanding, helpful and thoughtful. I am 33 have Psoriatic arthritis most places and in tendons and my mantra has become "Tomorrow's another day!" but like Verity I plan too much and get disappointed in myself when I can't deliver. I'm on depot steroid injections, oral steroids so therefore Alendronic acid and Adcal D3. Methotrexate injections and due to current flare i'm on Morphine. I'm relatively new to this forum but it's so easy to fit in so I look forward to getting to know you better :-) Abbie XXX
|
Date: 24.03.2010
From: jill
|
Subject: Re: new kid on the block !!
Hi Abbie, altho u have been in couple of weeks, feels like U have been conbtributing to our fab forum for months....huge compliment, so thanks for being here ...Sarah u will learn a lot in here, how others try and cope and realise that we r all like u, we get so down, fed up, bored with ourselves, fed up, in pain, another flare up etc etc.... But I beleive this forum is helpful to the many members that come in, lots of us pop in daily, some just now and again, but I find its better that I pop in daily, U know, keep the gang in order! LOLOL....we also talk about things 'Off Topic', becos at the end of the day, everything we do in life affects our well being, so if your stressed bevos u have seen a Nutty Doctor or painful dentist, anything, we talk about......one of the most popular topics we mention is DLA, disability Living Allowance, are u claiming this? hope so, beos we r all entitled to it...Jill
|
Date: 24.03.2010
From: Abbie
|
Subject: Re: new kid on the block !!
Oh Jill DLA lol I started claiming it 7yrs ago for a different condition. My condition worsened so documented it on my next form and my levels were cut Doh! Appealed and got original level reinstated. Was diagnosed with Arthur last Aug and more infirm for want of a better word but too scarred to re apply. In my town If u have higher mobility u get blue badge but i'm currently on lower from before but now can Only walk short distances and that's with a stick. What do I do. Taxi's are costing me a fortune.
|
Date: 24.03.2010
From: KayJay
|
Subject: Re: new kid on the block !!
Is there a Citizens Advice Bureau where you live Abbie ? They helped me get DLA after I failed the 1st time. They might be able to advise you about your situation.
|
Date: 24.03.2010
From: Abbie
|
Subject: Re: new kid on the block !!
Ah yeah there is, i'll call them tomorrow. Thank you Kayjay!
|
