Date: 02.03.2010
From: Kathleen Milne
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Subject: Inflammatory arthritis
My name is Kathleen and I am 28. I have recently been diagnosed with inflammatory arthritis and I am struggling a bit to get my head around it. Things are a bit out of control just now and I am trying to be patient as i know the medication takes time to work. I am irritable, have no appetite and burst into tears at the drop of a hat. I feel like I am pushing my friends away as I feel they dont understand what I am going through. My boyfriend helps out a lot and I dont know what I would do without him. Hoping to meet some new people who are going through the same things as me and can share their stories x
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Date: 02.03.2010
From: valh
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Subject: Re: Inflammatory arthritis
hi yes it blows your head away but the meds do work and life does come back to some sort of normality if you need pain meds ask for them you need to sleep or you will be exhausted it bad enough with out not sleeping. give it a few months you will have great changes by then good luck
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Date: 02.03.2010
From: Lade
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Subject: Re: Inflammatory arthritis
Hi Kathleen...sorry to hear about your diagnosis and the resulting symptoms and consequences...just out of curiousity though, have you tried anything natural for your inflammatory arthritis? I ask because I do know of several people who were diagnosed with arthritis, some very severe, and who have had tremendous success using a particular natural anti-inflammatory product...
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Date: 03.03.2010
From: Cathy
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Subject: Re: Inflammatory arthritis
Hi Kathleen
I know what you are going through- I was 20 and at Uni!
If it helps, I was worse at the very beginning than I have been since, let's hope things settle down for you too.
I did try a LOT of different "alternative" or non medical things, like elimination diets - one under a dietician could be helpful- I still avoid certain foods as they trigger a flare up. Supplements may also help, but what helped me most is feeling I had some control over the illness by trying different things.
good luck
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Date: 03.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Sorry Kathleen to hear your news. I was diagnosed a few weeks ago with Rhuematoid Arthritis [ is this the same as inflammatory ? ] anyway I started the meds last week end but they did tell me they take ages to work. Don't know if it's coinsidence but I had the best night's sleep last night that I've had for ages. I've been put on Plaquenil. However I'm an older sufferer [ 56 ] so I'm not complaining because I would have been devastated if it had happened when I was younger. Keep your chin up and once the meds start working I'm sure that you will feel better. Lots of hugs ;0) and you are allowed to be irritable and tearful as this is normal in your situation.
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Date: 03.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
Hi Kathleen
I've recently been diagnosed with inflammatory arthritis (yes kay, pretty much Rheumatoid but without RF in blood). It's a bummer! I still haven't entirely got my head round it and have days where I feel angry and irritable. Also been quite emotional - apparently it's the steroids but also my mother died shortly after I got ill so it's been a very tough time for me. You will come to terms with it and, hopefully, the meds will kick in. I'm still waiting :) Somebody told me to look up 'Spoon theory'. Google it - it is quite useful for explaining to friends how you feel though I haven't done so myself. I do get cross with some friends as they have no idea how tough things are but the good ones are fantastic! Why don't you ask them for help now and then if you don't already? It might make them feel more involved and more understanding of how difficult things can be for you.
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Date: 03.03.2010
From: jen
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Subject: Re: Inflammatory arthritis
Hey Kathleen, sorry to hear about your diagnosis. Im 23 and recently diagnosed so I know how awful you must feel and what you're on here for: you want someone to say the disease isn't so bad. I wanted to hear that too so I got obsessed with reading stuff online, and just found a mixed bag of facts. Some awful, some hopeful. There are no answers!
I can only wish you luck, because that's what it all comes down to and offer you 2 pieces of advice. One, learn about the disease and meds but don't get too obsessed with reading stuff because it'll take over your spare time. Two, don't listen to crackpots who say you can 'cure' RA naturally. There is no such cure, and diet is only one way to help your RA. You gotta take some serious meds AND if you wish, try healthy alternative methods as a support on the side. They work a bit for some, and not at all for most. If you lose a year trying 'natural' methods instead of medication, you might have permanent damage. Sorry to be so blunt. I do hope your disease gets under control quickly so you can continue with your life. Most people's symptoms improve with medication. There is always the chance of remission too, and you gotta hold on to that hope. take it easy
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Date: 03.03.2010
From: Angela
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Subject: Re: Inflammatory arthritis
Hi Kathleen, I was diagnosed with RA two years ago now,This attacked me suddenly, and I thought my life was near ending, as I felt so ill. Within the first year I couldn't walk,drive or dress myself.I lost my job as well.
It was the worst year of my entire life, (i am 53).
I did waste time on alternative supplements, and went on a rigid eating plan, and in the end I still needed the meds.Although I have to say I have had no adverse reactions with the meds, and I thought that maybe cleaning out my system as best as I could may have contributed to that.
I have been on Sulfasalizine,(one year) and started mtx as a combination 7 months ago.
Today I am as near to normal as I was before i got attacked.
So keep your chin up,hopefully you can only go up from here.
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Date: 06.03.2010
From: Kathleen Milne
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Subject: Re: Inflammatory arthritis
Thank you all for your kind words. I think I had been putting to much pressure on myself and have realised now I need to relax and just take things as they come.
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Date: 07.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
Hi kathleen, I agree with the posts ack to u there, I have same as u, I was so hard on myself, such a shocker, still find it tough...I agree too with Jen, lots crackpots will insist that the 'natural' way to go is best, they say that, cos they want U to buy their products! what meds r u currently taking? Also Please remember that the disease is diffrent in all of us, some r mild, some r severe,even so, we will support everyone, no matter how mild etc....we r a gr8 bunch here, will always help u, and someone will always reply to u......I am on Methtrexate(MTX) and Bio meds Enbrel(ANTI TNF meds) ask about those too...they have stopped a lot of flare ups for me, others think its brilliant.... we r all here for u, and I agree u shld try and read up about the disease, but remember some stories may worry u, we r all differnt at end of the day, and this is my mantra...POSITIVITY IS EVERYTHING! tc Jill x
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Date: 07.03.2010
From: Karen
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Subject: Re: Inflammatory arthritis
Hi everyone, I have just got the shock of my life, I have been suffering with ulcerative colitis since 2002 and about 18 months ago my joints started to hurt, I didn't realise there was a connection and now my spine seems to be my biggest problem, I am in so much pain! I too keep crying and then hating myself for it because I feel like such a coward! its a real roller coaster! it seems to have travelled from my cervical spine region into my lumbar spine region, god I feel awful! but I guess we all do! I think one of the biggest things for me is I feel so alone with this....I dont want to keep on at my family all the time.....I just hope they can get my meds right soon and I can get back to some sort of normal life...Its good to know Im not really alone!
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Date: 07.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
Hi Karen, I'm really sorry. Lots of us here have had the shock of their lives! It is very hard when you first get something like this. I still don't quite believe it myself (got inflammatory arthritis.) I keep thinking it will go and resent it when it comes back. You are not alone, believe me! We are all here for one another and understand how you are feeling. You are not a coward either, just coming to terms with this. Like you I'm waiting for the meds to kick in. This forum has been a lifeline for me and hope it helps you too!
love Sally x
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Date: 07.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
Hi Karen, sorry to hear about that, but there r meds on the market that the gp can help u with....ive got Proctitis(inflamation of rectum) i know ulcerative colitits can be part and parcel of this nasty disease, and ive recently beeen told after being in hospital for two weeks that i have (Gastritis) Inflamed stomach( it isnt Gastenteritis,) that is different, ive been told that the gastritis is prob due to all my meds, also have inflamatory artha...also got Gall stones too, casuing me big probs, but like u say, and Sally, we have enuf to deal with, and then Wham! we get another problem...heart goes out to u Karen, read up on the ulcererative colitis, ive got to go in for a colonoscopy, as they r checking me out for that too!...we r all here for u....did u have a colonoscopy to see(camera into the intestines? tacke care Jill x
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Date: 07.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Jill the Colonoscopy is not as bad as it sounds !! The worse part [ for me anyway ] was the laxative I had to take the day before. If they give you these then make sure you are near a loo !! If you want to know more then I'll answer but I know some peeps would rather not know. But DON'T worry you will be fine.
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Date: 08.03.2010
From: Jill
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Subject: Re: Inflammatory arthritis
LOL KJ I had a flexi sigmoidoscopy, few years back, they gave me that laxative, didnt work, well not as I expected like.....can u imagine what I saw on that blidddy camera monitor? lololol...I will get put out for the colon one, NOWAY am i going thru that again lolol...rather be conked out! how r u today? im seeing GP today, wannna know what that ache deffo is....driving me nutski! tc J x
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Date: 08.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Hi Jill glad to hear you are upbeat about it all !! Yeah I remember I had Pizza to eat the night before and the Dr guy could see that I had eaten doh !! felt a right fool. The hospital had given me the wrong cut off time for eating though - honestly !! and the stuff they gave me to take the day before was like bliddy dynomite hehe. Think they called it Pickalux or something quite innocent like that. Bit achy today in knees and fingers but I've been worse. Hope they find out what the ache is for you . tcxx
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Date: 08.03.2010
From: Jill
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Subject: Re: Inflammatory arthritis
Hi KJ saw my fab GP today at 2020. didnt get in til past 3, mind U, hes worth waiting for, very thorough!..hes writing to a Surgeon(that I didnt see in hosp) he was surprised that I hadnt! hes asking for me to be seen urgently, cos the ache seems to be from the GB, and it hurts to breath in around my shoulder blades..seems to be a typical symptom.....so gald I went today, so I feel a bit more Upbeat...hes asking for it to be removed....fingers crossed cos I know it will get worse, im far too intuned with my Bod, I know it will travel, mb not yet, but they will....plus cant stand this persistant ache, and im on high doses of Morphine, so imagine if I didnt take Zomorph, id be in agony...... my feet hurt today GRRRR lololol just at the sides...hate that.
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Date: 08.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Hi Jill. Look out for your skin or whites of your eyes turning yellow as well. I think this indicates something to do with the GB/Gall Stones as well. HOPE YOU GET SEEN ABOUT IT SOON ;0)
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Date: 08.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
hi Jill, that's good news, hope you get appt soon.
xx
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Date: 08.03.2010
From: Jill
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Subject: Re: Inflammatory arthritis
when I was in hosp, discharged last mon, they told me that I will be seeing a stomach doc within 4 weeks, well ive been home a week, rang up the docs secretary today, and guess what? Ya guessed it....No referal made!!! told Gp today,who said it was disgusting, considering i was in hosp 2 weeks! so u see, U cannot rely on what yu get told...I never leave it longer than a week, I always ring up to check, cos if ya dont, ya be waiting for ever!!... Even this letter my Gp is writing, Urgent he says, but they Vet them when the consultant gets them, they dont listen to the GPs, its up to the surgeon or consultant, they decide who gets seen next, anyway, altho My gp, whos great, he said to wait upto 3 weeks b4 I get an appointment, as soon as 3 weeks go by, I will be on the phone to the surgeons secretary!! always gets things moving.... neve ring the appointments, they dont know anything, if its Not on their screens, there isnt much that they can do...so ring the Secretarys always....sorry guys, off my Soap box Now..... but I cld write a book on Hospital care, appointment clinics, waiting times, incorrect medication, Incorrect Diagnosis, Incorrect (previous) Gps thoguths and cockups, snottty nosed hospital clerks, stoopid Message machines that say 'Not here right now, leave a message....Beeep' U say ya name and then get CUT OFF !! and oh yes, Stooopid Registrars, that think they r consultants and give the wrong information and and Incorrect Diagnosis, AFTER reading the Scan Results!!.......ok sorry Soap Box was a Tad high, couldnt get offf it LOLOLOL
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Date: 08.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Oh Jill sadly you can't tell us nothing new about this fantastic NHS system. We could also write a book with Mum's treatment by them !! Everything you say is spot on.
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Date: 08.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
Id sue em if I was U KJ x
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Date: 08.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
That's a very high soap box Jill lol! But you are right of course. The only way to get things done is to be persistent. When I first got ill and was referred for an URGENT rheumy appointment they gave me one 8 weeks away. I couldn't walk, bathe, get out of bed etc. Turns out they'd made a mistake and sent me to the wrong clinic!
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Date: 09.03.2010
From: Jill
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Subject: Re: Inflammatory arthritis
OMG.....that is terrrible, c those r the things that go wrong Sally.... always follow up your own appointments....told my gp yest that I was suppose to be seeing a stomach Doc at the hosp in outpatients, they said it wld be within 4 weeks, been out over a week now, and they have No record of me even being refered!...anyway, dont care now, cos My GP getting me to see a Surgeon instead! so im happier....think thats goona take a while tho Sally, usually once u have been seen, the waiting times get better.... im still awaitng tho, to see my spine surgeon, but hes waiting for my MRI scan results on my rotten neck! he wont op on my spine until he sees the report of MRI...everything takes sooooooooooooooo long, so all in all, im waiting to see my spine surgeon to be put on the waiting list for fusion(he says waiting times for this is jsut 3 months) so ths good, waiting to see about removing the Gall Bladder, diff surgeon, more waiting, and waiting to get results of the frigging MRI I had last tues, takes up 2/3 weeks for surgeon to view! grrrrrrrrr...soz bit peeed offf today
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Date: 09.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
Blimey! You have got a lot to contend with. I saw on your post to KJ that you aren't feeling so good today. Hope you feel a bit better by now but you don't need me to tell you to get back to your gp sharpish if you don't feel ok soon.
Sally xx
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Date: 11.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
bumping up
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Date: 11.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
Im Ok Sally, saw Bio Nurse today, all went ok, except that she told me Gastritis will be with me for life, so peeeed offf about that, shoulders hurt, neck and hip,....car had service...208.00, still under warranty thankgod, imagine if it wasnt, blimey.....also seeing Private surgeon, for whiplash claim on sat....cos im claiming as a twat crashed into me, causing me neck probs, like I need that like a hole in the head...hows U today sally? x
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Date: 11.03.2010
From: sally
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Subject: Re: Inflammatory arthritis
hi Jill, I'm ok , bit down, one of those horrid grey days that weigh very heavy. Feel tired and feet aren't up to much at the moment. When is that ------- mtx going to kick in? grrrr! I'll feel a lot better when it does. I may have lost the plot here, but why will the gastritis be with you for life? Is it caused by the meds?
xx
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Date: 12.03.2010
From: valh
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Subject: Re: Inflammatory arthritis
is it the time of year of what started feeling off and stiff couple of days a go and guess what joints screaming at me today ggggggggggrrrrrrrrrrr so fed up was doing so well and now just want to sleep till it goes away as if it will let me lol why is what a ask taking same meds not done anything drastic so why flare up what causes them rant over just waiting for pain meds to kick in .
jill sorry about gastro was it meds caused it???? i know some can think one of mine causing high blood pressure 150/90 got to go doc next friday glad it not today lol would not make it
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Date: 12.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
hi Val, not you too?!! Don't know why flare ups happen. Take it easy today if you can and maybe you'll feel better for the weekend.
xx
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Date: 12.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
Sally, I dont know, I asked bio nurse, I said to her, has it gone now, will it go, and she said no, its gets better, but have it always in the gut, so need to take omerprazole,helps with the acid....I will look further into it tho....I first thought Gastritis was Gastro enteritis, it isnt same, anyway will let u know what I found out, tried a website, but it doenstt say its for life....
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Date: 12.03.2010
From: sally
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Subject: Re: Inflammatory arthritis
yeah, that's what I wondered (not for life). Perhaps you should ask a specialist, if you could bear to that is!
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Date: 12.03.2010
From: Verity
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Subject: Re: Inflammatory arthritis
Jill loves specialists dont ya! You spend enough bloomin time with them! personally I think any stomach related illness is much more miserable than rest of body pain. I cant cope with feeling sick or having stomach pain. Thinking of ya Jill, and sending positive healthy thoughts your way! Im feeling the same at the mo Val, think I may be coming down with a bug or something coz Im a lot stiffer than usual. Saying that I think my MTX is becoming less and less effective. How you feeling today Sally? Hope youre well xx
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Date: 12.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
LOL@ U Verity....im blidddy sick of em, mind u, bet u seen some in your lifetime!?....just read a very intersting site about Gastritis, I think ive come offf lucky, Phewwwww, Some Gastritis are sypmtoms of Cancer...so it is a serious condition, however, I had biobsies taken and im fine, again doenst say ' for life' but I dont think she was far off wrong, becos it does have to be managed for rest of life, think I musta misheard her...does that make sense?...btw guys im not in pain with tummy, not now, just an ache where the Gallbladder is....so im feeling better, stronger, altho got a rotten pain in my foot! lololol....seriously im ok, waiting to see surgeon for GB will c what he says....ok gotta go for now, bk laters xxxxxxxxxxx
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Date: 12.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Jill I've been on the PPI's [ Proton Pump Inhibitors ] for about 10 years now. You should be feeling the benefit of the GB pain by now ? Anyway they are very good to protect the stomach as well if you are taking Diclofenac anti inflammatories. So I shouldn't worry too much about the length of time you might have to take them, if they work and stop the pain then it's all good ;0)
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Date: 12.03.2010
From: Jill
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Subject: Re: Inflammatory arthritis
Hi KJ u r so right, I learnt yest from Bio nurse all about PPi's, amazing....wished I had been on them years ago, they have helped that sharp pain I had, can eat, small meals now, without the pain, but gotta be honest, I can feel the GB ache, Dont take Diclofenic, dont work for me, im on Zomorph(opiates sadly) cant do with outn them, slow release morphine, god knows how the GB wld feel without those meds, but I get withdrawals from them if I miss 2.....but ya right, tummy feels good, yu r so knowledgable..thanks xx
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Date: 12.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Hi Jill so happy to hear they seem to be working for you. I said to my GP they must be some kind of weird magic or something bcos going from tremendous pain to no pain was ...... well magic !! Hope they keep working for U XX
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Date: 12.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
KJ dont u worry tho that mb your stones cld move, u know, travel into the ducts? or will U wait until it gets to that stage, and chances r, they wont, is that how U cope with knowing u have 11? stones in your Gall Bladder? I cant seem to accept it KJ, I know my body, always seems to get the extreme of things, like for example, had spine operated on 2003,then 6 years later, MRI scan, back was sore, another disc above where he operated has gone, hence fusion this year, or take for example, my shouldes r killing me, had 2 ops for impingemnt(took ages to get over shoulder ops) 3 years later, terrrible pain, it isnt just good old regular artha pain, it has to be Tendon Degeneration.....Reiters Disease caused all this to kick off, Ok I have a defective Gene, that predisposes me to Reiters(HLA B27Pos) however, most ppl get over Reiters, in fact 90% ppl do, 5% get odd flare ups and the other 5% ,ME, have it chronically for life! so u can see the pattern forming cant u?(sorry guys to keeep repearting my physicall issues in such depth) but point im saying is KJ, I go into hospital with severe tum pain, not only have they said I have Gastritis, but got gB and stones, I know those stones wont behave for me, I know im going to get pain and end up really sick if they travel into the Pancreas or Bile duct....do u c where I am coming from? My life was beautiful as a child, young adult, gr8 family,parents etc, then it all went wrong....I lost my 2nd born, full term first Son, James. There are 7 heart ops that guys Hosp come across regularly, but U have guessed it, My son James had the 7th!!! Callled TOTAL ANOMALY PULMONARY VENUS DRAINAGE, the hardest and worst type to have!, trying to give U an insight into my 'luck'....after I lost my beautiful boy,year later, I miscarry the next one at 12weeks, ok, lots women miscarry.....but not me, I have to get admitted, becos altho I had miscarried, the sac was caught betweeen the Cervix, Labour pains, and have to have an Op to remove my 12wk baby!...nowt is straightforward!...as the years have passed and got to now, 2o10, I look back and see that everything has been soooooooo extreme, lost my nan, thats normal, 18 months later my fab Mum, 22 months after that My fab Dad....Oh and befor losing my Dad, my daughter had Meningitis, shes OK, and my son(one off skool) had a heart op at age 2yrs 11months, only found that out after he had eaten some paracetamol....(my teen left them in her bedroom), took him to Hosp immed, but it was a godsend, becos they found he had a heart 'Murmur' I nearly died of shock, I thort OMG here we go again....was told"dont worry, its just a Noise, heart mumers r a noise" week later, scan on sons heart...Bingo...Needs Urgent heart op, back in frigging Guys, He survived the op, was the type where u drop down dead, or where u hear stories of a fit footballer dropping down dead, thats y my son needed that op but it was the same Hosp where my son James died in 1989!, on top of that, I have to other gorjus sons that have been diagnosed with Aspergers(mild autism)....we knew boys were 'different', we were told to wait until proper diagnosis,17yr old dx at 4, and my 11yrold, dx last year! I was correct both times!!.........so I look back on my life KJ(and I do know there r others far far worse off than me, so im trying hard to not be selfish) but I look back on my life and see that everything has been soooooooooo Extreme! To the max......... I have to explain this to a surgeon tht doesnt know me, to explain to him that I know things will get worse for me, Like my Bio Nurse said yest, I dont do things by half!....sorrry to ramble on.....guesss im still angry, angry about a lot of things, and I certainly dont need this bliddy GB issue, can feel it when i bend forward, and it aches....guys, no need to reply to this post, was just letting KJ know, becos she suffers with same thing, and helping me thru the Gall Bladder thang! lol.....obviously KJ needs to reply, but not looking for posts(honest) infact I hate being in the limelight...Honest! but its easy to type my feelings on here.....anyway, there it is, so i do feel worried about the GB more than mb I should give it credit for, but cant get my head around it at all!! becos deep down, I know it will get worse if its left...it will travel to a place it shouldnt go, seen that at first hand in hosp, not letting that happen to me! Ok sorry for the misery, not been same since got otta hosp, sorry xxxx
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Date: 12.03.2010
From: KayJay
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Subject: Re: Inflammatory arthritis
Hi Jill I know some people seem to sail through life, and some don't. We are definately in the latter !! Well prob not me as much but Mum has been through it healthwise in her life. Iritis [ like you ] 2 peptic ulcer ops [ the 1st time it perforated and she got septicimia] OH and they were treating her for gall bladder problems and it turned out to be an ulcer. She was that frightened on going into hosp and me calling an ambulance that she begged me not to but the state she was in I couldn't do anything else. She worried that it would come back and sure enough it did. The 2nd op they took part of her stomach away [ like a by pass op ] and has cataracts in both eyes. Then she's had hemmaroid [spelling?] op and lots of other stuff spondy something in her neck and a Laminectomy on her spine [ I think ] and finally this orrible Dementia. Through all these years she worked full time up to retirement. What I do thank god for [ every day ] is that my kids are okay. That's all I want for them to be okay. My little sis has 19 yr old twins [ girl + boy ] and the boy, Dale is Autistic. He started special needs residential college last year at Grimsby [ we live in Sheffield ] and just lately little sis has been so worried because he's been on the internet and looked up all these different diseases so he's been convinced he's got everything you can think of. Little sis really misses him and loves it when he's home in the hols. He's a sweetie. Back to the GB. DON'T WORRY Jill about the op or about them moving - I don't - if it happens - well it happens. Your GB is bound to be a bit sore still. I've got 3 stones I went to see the surgeon years ago and she said I was too fat to operate on so I kinda flicked it off, and to be honest taking the PPI's was an easier option. Then Mum started with dementia and that sort of took over my life so it's really that simple. Mum always used to worry like hell about things [ sometimes for good reasons ] but in the end worry get's you nowhere. OOOps look at me I've gone and poured my heart out as well but to bottle things up isn't good for you as well. I do hope you will feel in better spirits soon and thankyou for sharing your private struggles with me. Luv KJ XXX PS Dont be sorry ;0)
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Date: 13.03.2010
From: Sally
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Subject: Re: Inflammatory arthritis
I'm def in the 'not sailing through life' category as well, though haven't had as much to cope with as you Jill. Was really sad to read about your son, James. That's hard. I don't have kids but think it must the toughest job in the world to be a parent at times, esp when things go wrong. Re: GB, my aunt had hers removed and it was done by keyhole surgery and no problem at all. think she really suffered like you til they took it out. I swear to god that one member of my family or another seems to have had every single illness going. Could write a manual.
Hugs to you Jill and KJ. Be strong. xx
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Date: 13.03.2010
From: Verity
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Subject: Re: Inflammatory arthritis
Hey girls, Just been reading your posts and none of you want sympathy and to be honest I really don't know what to say! Just want to say that it all really touched me and Im thinkin bout ya... All my love xx
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Date: 13.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
((((thanks Verity, just found this post xxxx))))))
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Date: 17.03.2010
From: nadine
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Subject: Re: Inflammatory arthritis
Hi Kathleen,
I am new all this too Im also 28 and just been diagnosed with RA still awaiting treatment etc.. and all the stressful things like which drugs they want to put me on ETC... I have spent the last year back and forth with doctors getting nowhere. People on here are really supportive and give priceless advice on everything really. Some days Im feel fine (mentallY) and the next I am grumpy almost depressed. I think alot for me depends on how well I sleep which depends on how well the pain is controlled. Some days I cant stop crying and others nothing is a problem. Its a big thing to get to grips with. I still struggle but I have given up trying to control and look after everything and I found once I accepted that everyday will be different I felt better ... Still have bad bad days but I think we all will.
I cant speak for anyone else but I spent the first 6 months in a bit of shock really .... Then it sunk in and I dont think I felt any happier but I was calmer about it. Now I am a little angry due to a really bad rhummie but I have learned to stand my ground with the doctors (politely of course) It amazing the change when you walkin with a notebook and lists and write down what they say its like finally they take you seriously. My main point with my doctor is i want to get the RA under control asap as all the time I am only taking painkillers its not controlling the disease.
Basically i have found this website great for everything from bad days when it all seems wrong. to advice on how meds make you feel, ppwk practical tips. Hope you feel better about soon :-)
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Date: 17.03.2010
From: jill
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Subject: Re: Inflammatory arthritis
Hi Nadine...welcome, apologies to u as I dont reconise your name, but seems u have been on here at some point becos of the lovely compliments u made about the group.....it took me over a rotten year to accept this, and to date ive had 7 corrective surgery ops, and each time when I hear the joints neesda an op, I stuggle almost back to the begining to accept yet another op, i get sooo angry too....I thiunk your correct in the good and bad days, hate that, never know when im going to be ok, so cant book anything in advance, like see my m8, becvos i end up cancelling due to the fatigue!....anyway, hope to see more of u in here, we cld do with all the advice and support. tc Jill
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