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Date: 17.02.2010
From: gary

Subject: SULFASALAZINE

hi gang, hope you are all well, esp jill get well soon. a few of u may remember i had to stop the mtx tabs as my bloods went sky high,after about 5 weeks my bloods have slowly dropped but still a little to high. in the meantime i have just been taking prednisolone and have been fine. as i was still feeling ok without the mtx i thought i would try stopping the preds as well and see what happens.was ok for a week then the pain and swelling srarted appearing again so back on them again... had a rhummey app yesterday and he has put me on sulfasalazine, anyone on these or been on them and have u been ok with them ?
thanks all
take care
gary
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Date: 17.02.2010
From: Amelia

Subject: Re: SULFASALAZINE

Hiya gary,

I was on sulfasalazine for about 6 months they stopped the aches and pains but i had an allergic reaction to them, so been on mtx ever since. sorry i can't help anymore than that lol

Hope they work for you Amelia
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Date: 17.02.2010
From: Verity

Subject: Re: SULFASALAZINE

Hi Gary, I tried sulpha bout 10 yrs or so ago and had a bad reaction to it (rashes n stuff) so came off it instantly. Hope you can find someone with a positive result lol hopefully it'll help ya!

xx
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Date: 17.02.2010
From: Louise

Subject: Re: SULFASALAZINE

Hello Gary
I have been on Sulpha for nearly two years. I take six a day and have not had any major problems. For the first few months I did have headaches and nausea, but these side effects went away. It makes your urine bright yellow and can make your tears and perspiration slightly yellow too. You should be having regular blood tests whilst taking this med.
Hope this helps.
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Date: 18.02.2010
From: gary

Subject: Re: SULFASALAZINE

thanks for the replies girls.
as with most meds everyone reacts differently so will see for myself how i react in the next few weeks.have to have blood test every 2 weeks the same as when on mtx. will let you know how i get on.
take care all
gary
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Date: 18.02.2010
From: Angela

Subject: Re: SULFASALAZINE

Hiya Gary, I have been taking sulfasalizine for over a year now, with no side effects.I think they helped my disconfort, but my bloods kept high, so my rhummy added MTX to my medication. That was about 6 months ago. Still no side effects or complaints. (touch wood)
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Date: 18.02.2010
From: Greg

Subject: Re: SULFASALAZINE

Hi, I've been on sulf/zine for about 4 months now. It's working well. Initially felt really rough in my stomach and head, but thats calmed down a bit now, however I do feel a bit strange sometimes when I'm driving, a bit like motion sensitivity... Get regular blood tests...
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Date: 28.02.2010
From: gary

Subject: Re: SULFASALAZINE

hi everyone.hope u are all well.
has been nearly 3 weeks since ive been on sulfasazine and i have been getting worse. i know it takes up to 3 months to start working so will have to bare with it. left ankle really swollen also wrist swollen really painful at the mo,got a job walking and picking things up.had no side affect as yet so thats a good thing. will stuggle with work now, havent had any time off as yet but think the time has come as heavy lifting involved and hard to drive bacause of ankle. hope all will be ok when the meds kick in or it will be onother 3 months trying something else. off on hols in april.treating the old man for his seventith, at this rate he will be looking after me lol shouik be fun
thke care all
gary
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Date: 28.02.2010
From: Lynn B

Subject: Re: SULFASALAZINE

Hi Gary sorry to hear you are in pain please listen to your body and dont push yourself to hard.
Glad to hear your going on holiday in april are you going anywhere nice? make sure you get plenty of rest, mind you they say a change is as good as a rest enjoy your hol take care
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Date: 07.03.2010
From: jill

Subject: Re: SULFASALAZINE

Hi Gary have a gr8 hols, I was on sulfa, its meant to be gr8, depends on each individual, i reacted bad to it, after 6 months came offf it, we r all different, dont feeel despondent...tc Jill x
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Date: 08.03.2010
From: Sas

Subject: Re: SULFASALAZINE

Hi Ladies
Sorry have'nt been her for ages. WARNING This is not meant to frighten anyone and it is rare!!
I started taking Sulfa mid Dec had bloods done after 2 weeks they were ok. Then after a month I had a sore throat went to GP who gave me pencillin symptons got worse with lumps in armpit skin went black. Went back to GP 3 days later and he took one look and admitted me....it turned out I was in neutropenic shock white blood count was <0.25 and the infection was taking over and my body was closing down. Basically sulfa had wiped out my immune system totally. when immune system came back lumps n armpit turned to abcess ending up having a debridement of the armpit under GA 4 weeks on have a wound that is being packed everyday.
PLEASE do not ignore any symptoms you have go to GP and ask even if you think you are being a nuisance I did'nt want to go My Husband made me and thank goodness he did!!
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Date: 08.03.2010
From: KayJay

Subject: Re: SULFASALAZINE

OH..... MY ........ GOD Sas. Are you okay now ??
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Date: 08.03.2010
From: Jill

Subject: Re: SULFASALAZINE

SAS((((hugs for U)))) so sorry to hear u ahve been so ill....blimey i thort I had it bad recently!, feel rotten now, I havnt been on for weeks,and wld have asked where u r, I do that when a regular hsnt been on much....Sas OMG cant beleive u have suffered so much.....I remember my rhummy saying whilst taking MTX, that if u get a sore throat, it MUST be looked at, as there is a rare thraot infection that can make u very sick..one day I did have sore throat, remembered waht he saidm but thank god only had Tonsilitis!! Infact Sas, I mentioned this to someone on here recently about sore thraots whilst aking Immune suppressants! your Reason Must be y..... Im so glad that U came on here, U r right in telling us, becos Now we will be on guard ok, thanks to u for letting us ALL know......I truly hope u get well very soon Sas, I only came bk yesterday...been in hosp mysself...long story.... take care and Thankgod ya Hubbby made U go xxx
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Date: 08.03.2010
From: Jill

Subject: Re: SULFASALAZINE

BUMP UP TO TOP
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Date: 08.03.2010
From: Sas

Subject: Re: SULFASALAZINE

Sorry you have been ill as well Jill Hope you are feeling better soon :-) haven't had time to reads though all the threads yet - well that is a ridiculous statement I am bored and have had plenty of time LOL

Yes KayJay much better now thanks

It's good to be back here :-)
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Date: 08.03.2010
From: Jill

Subject: Re: SULFASALAZINE

just glad ya geting better Sas, how awful is that,to suffer like that, well U must be a brave tough chick, cos im sure ya not sleeping with painful armpits, blimey, wot a nitemare.....Ok Positivity is the way forward...lots love Jill x
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Date: 08.03.2010
From: Sas

Subject: Re: SULFASALAZINE

Oh trust me Jill I am not brave but fortunately its only the right armpit so lying on leftside which is not that good cos my hip starts to hurt by the morning!! I am going to see rheumy on 19/03 He came to see me when I was in I tried to cancel my appt as I am NOT going to take anything that toxic again. Stubborn I know but I am very scared :-( He persuaded me to keep appt so we'll see.
Your a tough chick too you have been though much more than me How are the kids? x
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Date: 09.03.2010
From: jill

Subject: Re: SULFASALAZINE

Hi Sas...welll, where do i begin LOLOLOL....still got my son off...been ayear and half now, dont know if u remember me yaking on and on about my son, he was in yr 6, his teacher said(in private) y r U sucha little Pri**, had huge investigation, no witmesses, beleive my Child, this teacher is a jerk! anyway he wldnt finish his yr 6 off,had nearly a year to go...everyone invented after me, Ed welfare officer, social services, etc etc, summer hols came, he was looking 4ward to glijg to secondary skool, went on induction day, never went back!!! hes now been off since they began last sept!, hes doing a computer/combined tutor home thingy called FLESS...Flexible learning education support system... teacher amazing, takes him into sec.school for a few hours each week... Psychiatric he is under said, hes suffering from severe anxiety/and school Phobia...was shocked, cos altho im unwell, and might not wanto to go out, ive been a prisoner now for year and half, i wont and cant leave him for more than an hour during school runs, his behaviour is better tho....so what with all my stooopid illnesses, and son being off, its been a huge stressful worrying time, have meetings every 6 weeks! LOL bet ya wished ya never asked, but thats it in a nutshell.....My youngest son, just 11, begins the secondary sch this summer....and yet my 12 year old wont be there for him! so sad....cant ever see my son going back to school....dont know what else to do!...Val remember when I first told U about my son.... bet u cant beleive hes still at home!! Sas, U make sure U get rest Ok, I wouldnt take that sulfa after what u went thru, they took me offf mine, so u surely can be taken offf yours....go to appointment, and ask about other stuff..U r on MTX arnt u? can u try and go on the Anti TNF instead, I did, less flare ups, much better for me too.....let us know how u get on ok xxx
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Date: 09.03.2010
From: Sas

Subject: Re: SULFASALAZINE

Jill
I came off Sulfa straight away havent taken MTX either for about 6 months - liver didnt like. Not taking anything at the mo except diclofenac!! Another Dr (not Rheumy) who I trust said there is an enzyme in the body that filters these toxic drugs when you take them and he thinks I dont have that enzyme - not sure and didnt ask if that enzyme can be replaced/given to you.
I am so sorry to hear your son still not in school I cant remember if I told you this before but a friends son had the same they had 2 hellish years but he did eventually go back do his GCSES(got average passes as well) and is now in college. A lot of it was separation anxiety as well with him so maybe as you are not well your son doesnt like leaving you in a sub conscience way!!!
Take care x
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Date: 10.03.2010
From: jill

Subject: Re: SULFASALAZINE

yea that cld be it Sas, he says he feels thzt he wont be in dame league educationaly as everyone else, but hes been checked and scored and he is...he went into sxchool today with his tutor that helps him at home, went for two hours, just to familiarise himself with the sch etc..... anyway thx for4 posting...How r U toay ?? x
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Date: 30.03.2010
From: gary

Subject: Re: SULFASALAZINE

thought i would give u an update. still no sde effects but the tabs dont seem to be working. have to have 2 weeks off work, just coulnt manage. went back to see the gp today and have been booked in for steriod inj next week. hopefully that will reduce the pain and swelling. gp also chasing up app with rhummy as i should of been bk to see him by now.
take care all
gary
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Date: 30.03.2010
From: Amelia

Subject: Re: SULFASALAZINE

Hope the steriod inj works for you, i had mine done last year April just before i went on my hol's and i felt great don't wether it was because i was in hot country or the inj but either way i felt normal for a while lol.
Take care and have a nice holiday Gary
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Date: 03.04.2010
From: Michele

Subject: Re: SULFASALAZINE

Ive been on sulfasalazine for 3 weeks now and have a persistant rash that is starting to burn. Also had bad virus, but counts keep going on. Doc says to continue meds, anyone out there have any simular experience?
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Date: 03.04.2010
From: Verity

Subject: Re: SULFASALAZINE

Hey Michele. I tried sulfa when I was about 14 and came out in a rash like you described. I was taken off it, but it was a long time ago. x
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Date: 06.04.2010
From: Tracey

Subject: Re: SULFASALAZINE

Hi, I have been on Sulfasalazine since last July. Had horrible nausea at first but Doc prescribed anti-sickness tablets that helped! I am now several months down the line and although I feel kind of better than I did, I still don't feel brill and my bloods have risen since being on it. I am off to Docs to talk about going on Mthx to see if that suits me better. if not, I will go back on Sulfa and get on with it!!
Hope you are doing ok xx
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Date: 18.06.2010
From: iris bown

Subject: Re: SULFASALAZINE

i have been on sulfasalazine for 6 months bloods o. k. but cannot sleep get upearly hours of morning have a cup of tea and read my book but it does not help yet i feel tired most of the day any suggestions
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Date: 18.06.2010
From: Teresa

Subject: Re: SULFASALAZINE

I was taking Sulfasalazine and had no side effects at all. Until after about 7 weeks I developed a rash. I thought nothing of it, and then woke up one morning with my whole face swollen up like a football! Apparently I had a dose related allergic reaction to them and am about to start on Methotrexate.
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Date: 18.06.2010
From: Eugene

Subject: Re: SULFASALAZINE

I was on sulfasalazine about 3 years ago but had to come off after approx 4 weeks as had a major reaction to it. Went bright red from head to toe and swelled up everywhere!
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Date: 10.02.2019
From: John

Subject: Re: SULFASALAZINE

Hi iāve been on 2000mgs daily of Sulf for about 2 years now and twice this week my left leg has given way weak and heavy.
Is this related to R A or the different drugs iām taking ie.the above,Ramipril,Pravastatin,Laransoprozol,Sertraline,Warfarin for AFib and Bisoprolol.
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