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Date: 09.02.2010
From: KayJay

Subject: Anyone Else Have Anemia With Arthritis ?

Just been told I might have Anemia. Went for my 3 month Diabetes check and the Nurse flagged it up. Had another full blood count test so I have to ring them up next week. Just wondered if this is normal with Arthritis ?
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Date: 09.02.2010
From: julie

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi Kayjay i have R/A and have been told i have anemia and could be related to my r/a but my gp doesn't think it warrents any treatment at the moment.Ask your gp if you could take any supplements.
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Date: 09.02.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Thanx Julie. I think they want to wait to see what todays blood test shows. I told the Diabetic nurse - no wonder I'm anemic with all the blood tests they take !! - diabetes - rhuematology - neuro's - lost count now :0)
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Date: 09.02.2010
From: Jill

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi Kayjay, u must feel like poo!...becos u have comlicated illnesses, wouldnjt surprise me that u will get anemic...(forgot) are u taking MTX? did they say how low it was? cant they give u supplements? at least they have flagged it up....keeep ya chin up ok x
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Date: 09.02.2010
From: Verity

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi KayJay! Im on iron tablets permanently because of anemia. I think I always have been anaemic but i had results today and my Hb is 10.6 now! At least one st of tablets are keeping something stable! lol
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Date: 09.02.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Thanx Guys. No Jill I'm not on any meds for arther at the mo because they are still diagnosing which kind I've got. Go back later this month when they said they would put me on Hydroxychloroquine if it's inflammatory arther. I think they chose this because I'm diabetic and its not a steroid?
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Date: 11.02.2010
From: Jill

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi kayjay, ooops so many ppl and so many posts, with so many diff probs....soz, well hope they sort that all out soon, is your diabetis under control? (lol bet ive asked u this too) apologies, I do forget a lot things, must be the blidddy zomorph! tc Jill x
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Date: 18.02.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Yes I've got anaemia the GP receptionist told me to stop taking the Diclofenac. I said I've not taken them since last month when the Rhumie gave me a steroid injection. So further advice from the GP is to increase the Lansoprazole meds which are for gall stones !! confused ???? well I am as well.
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Date: 18.02.2010
From: Angela

Subject: Re: Anyone Else Have Anemia With Arthritis ?

I have RA and my blood shows aneamia on every test but like Julie, I dont need any medication for it.
I take Lansoprazile as well, I thought that was to put a protective layer on my stomach to prevent damage from the painkillers and anti-inflamatories.
Mind on saying that I haven't taken either for months now, but the gp said to carry on taking them.
I am confused now to???? lol
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Date: 18.02.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Thanks Angela - I'm going to try to solve tomorrow when I can actually talk to the GP. Instructions might have got mixed up through the receptionist !! It wouldn't be so bad but I feel as weak as a kitten and soooo tired all the time.
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Date: 18.02.2010
From: Lynn B

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi KayJay, sorry to hear about the anaemia maybe they will put you on iron tablets? I am just wondering why you have to increase the Lansoprazole? I heve taken them for 3 years, they are to protect my stomach cos i take asprin and other meds. Hope you get it sorted take care.xxxx
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Date: 19.02.2010
From: suze

Subject: Re: Anyone Else Have Anemia With Arthritis ?

hi kay yes i to have anemia with my RA and have to take iron every day
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Date: 19.02.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi all thanx for your help :0) Just come back from the GP's and the reason for the increase of Lansoprazole is because the type of blood test result I had shown that my red blood cells are small which inidicates that there may be an internal bleed in my abdomen. So the increase is to try to stop this. However if the next blood test in 2 months shows no improvements I will have to have further tests.

The GP said it can be brought on by anti inflammatories [ I was on Diclofenac slow release capsules ].

I have also read somewhere that the meds taken for RA can cause anaemia. But as I'm not on any of these meds [ still under investigation for inflammatory arther ] it can't be that. But I thought I would just let others know about this.
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Date: 20.02.2010
From: Angela

Subject: Re: Anyone Else Have Anemia With Arthritis ?

AH well that explains it.
My gp thought I had a little bleed at one time in my stomach, and he sent me for a colonoscopy and an edoscopy and it turned out I had gastritis and a bit of diverticulitis, but no bleed.
If there is one KayJay they have a very good antibiotic that heals it, my hubby had them when he had an ulcer.
It sounds like your gp has it all in check.The only little thing I would want though is a check after one month not two, but there you go I am a big worrier lol.
Take Care
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Date: 20.02.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Thanks Angela. Hope I don't have to have the endoscopy again !! wahh !! last time I opted not to have any meds and went in cold. Must have been feeling brave !!
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Date: 16.03.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Finally got the Iron supplements from the GP today. I've been feeling absolutely terrible. Managed to do some shopping yesterday but the girls at the cafe were all saying how ill I looked. Pale, tired out, wobbly legs etc. It's difficult to pin point the reason as I'm Diabetic as well. Hoping the Iron will work - GP also said I might be at more risk of infections with RA meds ? Not heard of that before. Anyone else know please ??

She also said I will have to have a full blood count in 6 weeks and if the Ferritin is still low I'll have to have further stomach investigations. Noooooooo !!
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Date: 16.03.2010
From: Verity

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hey KayJay,

the arthritits meds decrease your immune system, so you'll be prone to colds, abscesses, infections, ulcers, all the horrible little things like that.

Good news about the iron! Im permanently on the stuff coz its the only thing that keeps me awake! lol Again, its the meds and the disease that bring it down isn't it?

Hope youre well : )

xx
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Date: 16.03.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Thanx Verity actually I feel crap !! [ but thanx for asking ]. I've seriously thought about coming off the meds even though I've only been on it for a few weeks. Is this really what you feel like when you are on them long term ??? Because if it is I'll give them up and just accept the pain/stiffnes/swollen joints. Diabetes also makes you prone to all the infections you mention as well. Maybe just the way I'm feeling right now and probably talking out of my bottom but I hope the Iron will perk me up but I'm a bit down in the dumps at the mo.

You okay Verity ?
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Date: 16.03.2010
From: Lynn B

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi KayJay you will have to give the iron time to kick in, hopefuly it will start helping in about a week. Sorry your feeling so down ((((HUGS))) for you tc. xxx
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Date: 16.03.2010
From: Paul

Subject: Re: Anyone Else Have Anemia With Arthritis ?

I've been on iron tablets before and they do help. I think i need some now, as i'm shattered :-(
Keep on the medication its worth it in the long run as a cold etc is better than losing mobility to a joint.

regards

Paul
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Date: 16.03.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi guys thanks. Will give the Iron a chance but if I feel like this all the time then I'll just give up. >:( but .......... thanks for your support :0)
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Date: 16.03.2010
From: Verity

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hey KayJay, if you give up you wont have the side effects but like Paul says, the arthritis has full reign on your joints and can be as aggresive as it likes. I refused to take them all through my teens, coping just on anti inflams but am paying for it now coz Im having to have me hips replaced and I have deformities and very limited movement in all joints.
Maybe if you found an alternative that could help slow down the disease that could be good, but im not so sure about being on nothing : )

I usually feel dreadful, sick etc for a couple of days after taking MTX but this last week I was ok! I havd a bit of an achey cold but none of the sickness! Maybe you can get more used to it?!?!?

Take care xx
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Date: 16.03.2010
From: jill

Subject: Re: Anyone Else Have Anemia With Arthritis ?

\kj, the side affects do get better, mb ŽNot go altogether, but onve that Iron kicksx in, your resolve will be stronger, and U will cope with the meds, like the gang sday, whats worse, a cold and its affects, or extreme deformity or the joints, and then corrective surgery, that is pain, also your Diabetis must be affected by all what U r going thru, Please KJ, U r a great support on here, U give out fab advice and wld tell me the same, to keep fighting....Pls KJ Keep fighting, wait till Iron pills kick in(forgot ewot Immune meds u r on, soz) but dont give up on them, does take time to get use to them, but the side affects r harldy anything, compared to Arthritis!...take cae and lots of Love xx
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Date: 16.03.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hey thanks Jill. I'm on a moderate one called Plaquenil - god knows how some of you go on with stronger ones !! The R Nurse said they put me on this because of the other meds I taking. Yes you do speak sense Jill and all of you I'm just feelin sorry for meself today. Tommorrows another day as they say. Thanks for the pep talk me old M8 ;0)
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Date: 16.03.2010
From: jill

Subject: Re: Anyone Else Have Anemia With Arthritis ?

kj I felt like Poo yest and day b4, feeling well sorry 4 myself, and angry, but i feel mentally better today, the sun makes a major difference to me.,... having Diabetes is horrific enuff, I c hoe it affects my fella, hes well one day, or two, then unwell, or 'Off it' as he explains to me, but he getsd withdrawn sometimes, wont tell me hes feeling crap.. do u do that too with regards Diabetes? One Day at a time KJ xx
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Date: 16.03.2010
From: KayJay

Subject: Re: Anyone Else Have Anemia With Arthritis ?

I can be a bit of a party pooper at times but it's because [1] I ache and feel stiff nearly all over and I just want to be in bed and [2] I can't drink bcos of Diabetes while everyone else is getting merry and silly I'm sat there like Mary Whitehouse [lol] and [3] yes the Diabetes can make you very tired as well and for some strange reason very angry [ think it's when we start to hypo when blood sugar crashes to a low ]. I'm actually dreading the daughters wedding in June [ I feel awful just thinking that ] - if I feel the same as now anyway. Like U say 1 day at a time Jill xx
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Date: 16.03.2010
From: paul

Subject: Re: Anyone Else Have Anemia With Arthritis ?

Hi KayJay,

I know about not being able to drink some alcohol as with MTX your're not supposed to either as it causes even more damage to you liver.
Since i've been on MTX i haven't touched a drop and how i miss it too, especially when all those around you are have a few sherbets.

regards

Paul
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