Date: 08.01.2010
From: Luigi
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Subject: O/T questions re how to use forum
As a new user could someone tell me if there's a search facility so I can look up old threads or do I have to trawl through the pages. Also do I have to enter my name and answer the maths question (although I admit, it is pretty easy)every time I want to post a comment or is there some way I can register?
Thanks from a computer scaredy cat
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Date: 08.01.2010
From: Luigi
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Subject: Re: O/T questions re how to use forum
See. told you I'm hopeless. I also forgot to ask if there's a way I can register so I know when someone's responded to one of my comments and whether I can keep track of threads I've joined in?
And why do I have to re-enter my email address when I add to a thread, but its 'optional' when I start a new thread? questions, questions.....
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Date: 08.01.2010
From: Angela
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Subject: Re: O/T questions re how to use forum
Hiya Luigi, I think most of us have trouble trying to keep track of our threads, that is one tiny sore point for me of this forum, and also the trawling through past posts if you want to know about anything in particular.I dont know what the answer could be to help the matter either.I have sometimes written down the headings of the posts I have written on then I know where to go back to, that worked while I remembered to do it.
You do have to enter the maths question and put your email etc to,it is to do with monitering the forum I think, as the sum thing seemed to start shortly after some undesirable people needed to be excluded, I could be wrong though its only a guess.
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Date: 08.01.2010
From: Luigi
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Subject: Re: O/T questions re how to use forum
Thanks Angela. Well at least I know its not just me now...I'm only on a couple of other forums but they do seem to have more depth to them. I like to be able to share a little information about myself - like where I'm from, what I do etc. and am interested in knowing the same about others. This is always optional so people can remain anonymous if they want to, but I think it makes it a little more personal. The maths question probably stops automated spammy type systems getting in, because even undesirable people would surely be able to do the sum if they wanted to post.
The forum is interesting and I am learning about RA all the time from it.
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Date: 08.01.2010
From: Angela
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Subject: Re: O/T questions re how to use forum
Yes I know what you mean about making things more personal, I do agree.
What happens to me on this forum, I do share information about myself, and ask others about their situations but nine times out of ten I forget who's got what, for how long,what age, and so on.Then when I try to find them on past posts it all begins to get a bit much and I give up.That is apart from Jill of course she has the patience to repeat her condition to all new members,and she also makes me giggle so much how could anyone forget her lol. I am also learning more and more about RA, but I think I am still in denial about having it for good, its a big thing to get my head around, especially the more and more I read and learn.
What about you how do you feel about it?
By the way I am 53, had RA for 2 years.
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Date: 08.01.2010
From: jill
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Subject: Re: O/T questions re how to use forum
LOL Angela I tell everyone only cos I need their sympathy LOL.....I do often repeat it, so that others can see how bad I am lol....im falling to bits.....but also that I have a happy disposition, no matter how bad it is....btw Im still trying to accept my disease too.... havnt yet so far!
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Date: 08.01.2010
From: valh:-)
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Subject: Re: O/T questions re how to use forum
you sympathy lol u never let any one show u any we can send u hugs but that all and u do not tell us how bad u really r. we love u girl
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Date: 08.01.2010
From: jill
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Subject: Re: O/T questions re how to use forum
AWwwww Valipops. I do take on board what u tell me Val...U give out great advice and lufff ya too....sorry I didnt txt u back for New year, had no credit lol......And hey U, just thinking, U never told us how bad U been getting, U r norty val......read ya posts and ya hips r getting bad, that hasnt happened b4 had it.... U deffo need MRI on them, I cant sleep at night due to my Hip pain, left is so bad too....jsut had some bloods taken, as went to gp other day, told him ive had enuff, and felt like i was dying,been feeling weak, mite be aneamia I dont know, but I was geting waves of that feeling(sorry to be so honest, but U know me) simply becos all of me is in agony Val...Honest, its so severe, from neck right sown to my knees, thankgod my feet r ok at the mo.....I even have Costochondritis at the mo too!!!! Grrrrrrrr.......anyway valipops, seeing surgeon on 12jan with rhummy.....will let ya know wot happened..... when U going back to hosp?? take care old chick, lots hugs and luff xxxx
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Date: 08.01.2010
From: Angela
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Subject: Re: O/T questions re how to use forum
LOL You are a joy to have on the forum Jill, and I luv your humour,you dont know how many times you have made me nearly fall of my chair laughing at some of your comments you are a scream.
I can tell you are happy person even though you suffer loads,thats another lovely trait about you. I am sure no one would ever get bored being around you.
Big hug to you
xx
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Date: 08.01.2010
From: jill
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Subject: Re: O/T questions re how to use forum
Awwww Angela Now ive just blushed!!! :) lol...ty for your sweet kind words, well I try to let ppl see my personality shine thru..yea ya rite I am a joy to have around LOLOLOLO head getting swollen now....weeek dont need thatm head is heavy enuff for my sore wee neck! wannna larf.... went ot have a neck brace fitted at the hospital, she got out the Small size, I felt great, she then said, u need smalller as your neck is slim and small....I replied " my frigging neck is the smallest bliddy thing on my body?!" lol shame its not my Ass.....seriously tho, my neck brace is too big, so I have to put a scarf on, then the neck collar and the rest of the scarf goes around the collar as support to fill it out etc....plus I dont like people to see me wearing a brace..... anyway, my fabulous Dad was once a Comedian, maybe i take after him......lol
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Date: 08.01.2010
From: jill
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Subject: Re: O/T questions re how to use forum
pooo Spelling errors...soz angela
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Date: 08.01.2010
From: Luigi
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Subject: Re: O/T questions re how to use forum
I am 47 and have only just been diagnosed, awaiting appointment with rheumatologist. No history of it at all in my family, although my mum and twin sister have similar symptoms which havent been diagnosed. (They are both going to ask their GPs for tests)I have no idea how bad my symptoms are as I have never had anything to compare to, although reading some of your stories I think that so far I am being let off lightly.....
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Date: 09.01.2010
From: jill
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Subject: Re: O/T questions re how to use forum
Luigi hi again, hopefully u will remain with lesser probs for a long time to come, but I think the nature of R.A. sadly is, if U arnt given the correct Medication Like say Methtrexate, Or Anti TNF Like Enbrel, then my understanding is if U dont go into remisssion, the disease attacks the joints , bone, due to the Synovitis inflamation, it attacks the joints, that is y most of us sooner or later, (sooner is better) that u get the meds to stop the degeneration getting worse....Hopefelly they have caught U early enough(mine wasnt) thats y im so bad physically(now on the correct meds) and U will not be worse than u r now.... its a nasty insidious disease, the more u learn about it, the better, altho I sometimes think, if U read too much and can panick about it, can make u feel very stressed.....this forum has a lot of very experienced Vetrans Lol, and we try and support and help u as much as possible, so ask as many questions as poss.....take care Jill
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Date: 09.01.2010
From: Angela
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Subject: Re: O/T questions re how to use forum
Luigi, No history at all in my family either. It will be interesting to see what the GPs of your mum and sister come up with.
I dont suffer anymore like some on here, and I hope it stays this way.
I think like Jill said being put on the medication sooner rather than later has stopped the disease from rampaging around my body, so even though it shows in my blood still very active, the medication is keeping it surpressed.
I was diagnosed in December 2009 and started taking the medication in April when I saw the rhummy, so it took 14 months from first signs to treatment. Hopefully yours will be quick to.
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Date: 09.01.2010
From: bsk
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Subject: Re: O/T questions re how to use forum
hi Luigi, I've only recently been diagosed too. Got sero negative inflammatory arthritis. Similar to RA but not testing positive for RA factor. No-one else in family has it tho my mother suffered with very severe osteoarthritis. Never appreciated how tough her life was til I got ill, which happened last summer very acutely, overnight. Could only use my left arm in the end, couldn't butter piece of toast, that sort of thing and taken into hospital and stuffed full of steroids. Just started on Methotrexate which I hope will halt the disease. I am not as bad as some people here now I am on drugs. Before, was truly terrible. I'm 53 and live in norf london lol! Welcome to the forum. And we all love Jill!
Sally
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Date: 10.01.2010
From: Luigi
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Subject: Re: O/T questions re how to use forum
Thanks to you all for taking the time to reply.I am just like you Angela, cannot remeber specific details about people etc. I am 47 and ffrom 'oop North' in Morecambe,Lancashire a beatiful part of the country very close to the Lake District and -I love living here. Still havent got my appointment with the specialist, but then it was only last Monday I found out there was a problem!
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