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Date: 18.12.2009
From: shelzy1

Subject: newly diagnosed 32 year old female

Hi All

newly diagnosed as of tuesday this week. Have taken my first dose of methotrexate 15mg weekly followed by the folic acid two days later and had the steroid injection on Tuesday. Dont feel any different ankles still sore and swollen but feel really weepy - is this all to be expected?
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Date: 18.12.2009
From: jill

Subject: Re: newly diagnosed 32 year old female

Welcome to the forum, this is a gr8 forum and u may find u will need us all in the next few weeks, we give out advise as best we can, and love and support, its Veery Natural to feeel weepy, and if it caries on, pls tell your doc, this is normal to feel like that, becos its a huge things that has
happened to u.....we r all different, and some cope better than others might, i sisnt accept my probs for a very very long time, others accept it beter than some of us, we r all difff u c......on the Positive side of things, as U were only diagnosed Tues, Im amazed that they have given u Methtrexate so quickly! honest, incredible, so that is a gr8 start, MTX dampens down any further joint probs. U wont notice any difffernce yet, it takes up to 3 months for MTX to kick in, did they not tell u that bit?u shld feel better in a few weeks i wld have thought... in the meantime u will feeel upset and angry too...again that is all normal, this is where this forum helps..... plus reading other peoples messages, they will inspire u, and sometimes, in time, yu will c that others r worse off than others, and it can helpin a way to put into proportion your own condtion.....again we r all different, and iu get thru kn owing that there is always someone worse off than myself........ for u at this time tho, its far too early to think like that for u, as this is a huge sad dissapointment for u, and its also the unknown......u can learn a lot on this forum, everyone is so nice and helpful.......just a suggestion, seems its best for most of us that take MTX to take at night, sleep off the side affects......u may not get side afects, again we r all diff, but say they feel sick and tired etc..........pls come back into the forum, u will need a lot of support and honestly, this is a good place tp come, u can be angry, moan, be upset, we wont judge anyone.... becos we r all in same boat, some worse than others, granted, but we r here for eveyone...take care Jill x
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Date: 19.12.2009
From: shelzy1

Subject: Re: newly diagnosed 32 year old female

Hi Jill
Very many thanks for the reply - I have had the symptoms for the past year and was misdiagnosed as having mortons neuromas in my feet and was being treated for it and referred for surgery but returned in the meantime to my gp because I was in so much pain who did repeat bloods and they can back with increased inflammation from the previous lot! The rheumatologist I have seen is really nice she has said she hopes to me make me better (and putting my faith in her that she can, I feel rubbish)I took the MTX at nite as you said and did get the symptoms of feeling spaced out even though I was meant to be sleeping? weird, I really thought the steroid injction would have helped but not at all, I have a terrible sore knee now which is new to me! As you say I will keep popping on her and feel more of a hinderance to my family at the moment who dont seem to understand and everything just turns into an arguement and me in tears! thanks again shellx
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Date: 19.12.2009
From: KayJay

Subject: Re: newly diagnosed 32 year old female

Ah shelzy I feel so sorry for you feeling tearful ! Some members of my famly did not understand my Fibromyalgia symptoms. I'm sure they still think I'm wimping out when I say how tired I am ! I printed off a leaflet from the Fibro info site and just left it on the table for all to read.

And at this time of year we are expected to be wonder woman [ or should I say person ]. I hope the meds will make you feel a lot better.
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Date: 23.12.2009
From: jill

Subject: Re: newly diagnosed 32 year old female

Hi Kayjay lol i asked in a prev post if ya male or female., ive got a terrible memory btw, so forgive me...ya right about being wonder woman.... wish I cld get the Costume on tho lol
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Date: 23.12.2009
From: kazzie

Subject: Re: newly diagnosed 32 year old female

hi hun i felt like that for the first few months but it does get better this site is great to help you as well .i am now on 20 mxt and graduly gettin better
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Date: 23.12.2009
From: Verity

Subject: Re: newly diagnosed 32 year old female

Hi Shelzy, Ive got RA and am taking MTX. It is a nasty drug but it does help soooo many people. Its made my CRP come down from 83 to 8.8 Im quite amazed actually lol
When it comes to being emotional, well, ahem, I have enough emotional outbursts to sink a ship lol Its a bit thing to deal with and I still struggle after 18 yrs of it! The best thing is to keep talking (or writing. I find writing helps). Talk on here so you don't have to feel youre 'putting on' anyone. I just find it helpful reading about and communicating with people in a similar boat.
x
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Date: 24.12.2009
From: bsk

Subject: Re: newly diagnosed 32 year old female

hi Shelzy, I've been newly diagnosed too(3 weeks ago) and also falsely diagnosed with mortons neuroma! I've had a lot of steroids recently and my gp said they will make you weepy on their own, never mind having to digest the impact of having an illness such as this. My advice to you is be kind to yourself, try to get as much rest as possible (hard at this time of year I know!) and get as much support as you can.
Hope you have a good Christmas! Sally
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Date: 24.12.2009
From: Lucy29

Subject: Re: newly diagnosed 32 year old female

Hi Shelzy,

Sorry to haer of your news. I have had arthur since I was 2 so kinda used to the ups and downs now. The steroids take a while to kick in and in my case dont last too long or take away all of the pain but different people take to them differently so you may get lucky. I think as your diagnosis is new you wont have had too much damage from the disease as yet so they may help you out more. I have damage from over the 27 years and this is what causes alot of my pain and its hard to treat already damaged joints.

The mthx helps to slow down this damage so if they have caught it early this may also work well for you to.

Try to stay positive....I know its hard but you will find that getting stressed and upset can make your symptoms worse. I know when i'm down/stressed the pain always seems worse.

I hope they find something taht works well for you soon

Take Care

Lucy x
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Date: 28.12.2009
From: shelzy1

Subject: Re: newly diagnosed 32 year old female

thanks to you all for the replies. Due to take my 3rd lot of methotrexate tomorrow and am dreading it. I have been ill since taking the last lot felt ok Wednesday but from wed nite I have had a really bad cold/cough and am now left with zero strength/energy.

Do you think I have probably just caught a cold and it is taking a while to clear. By 4/5pm each day I have had it cant do anything feel physically sick just getting in bath and bathing children!

Going to mention it when I return to rheums mid Jan but really hope this week I dont feel same!

Shelx
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Date: 28.12.2009
From: Verity

Subject: Re: newly diagnosed 32 year old female

i get those symptoms from it, not as badly as yours but it sounds like it could be the MTX
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